I have a syrinx and can't find a doctor that knows much about it?
Im desperate for relief in my neck, brainstem area. I am numb in every limb, random Nausea, circulation issues, i am desperate for any direction on how to go about getting an appointment at mayo or anyone who knows a surgeon familiar with syrinx?
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No it is not considered a disease. It is defined as “fluid filled cavity that forms within the spinal cord. There are many factors that may contribute to its development.
Do u mind me asking where the syrinx is for you guys? Everything i see seems to be cervical....mine is thoracic and grew 5 times the size it was from 2022-2025
Thanku so much.
@kritter19 mine is from the foramen magnum to my T6.
On mri mine says spinal cord syrinx at level t5-t9 and extends 5cm craniocaudal. Scoliosis seen
That's all i know:(