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DiscussionWhat makes ascending thoracic aortic aneurysms increase in size?
Aortic Aneurysms | Last Active: 7 hours ago | Replies (48)Comment receiving replies
Replies to "I do not have any underlying causes except hereditary and until about 8 years ago, had..."
My husband found out he has Loeys-dietz syndrome after his brother’s daughter was diagnosed and the majority of his family members after having genetic testing that the majority of his family members had the gene. He has both an aortic aneurysm and an abdominal one which is larger and he has scans every 6 months to watch for growth. It’s scary as hell and since then other problems have been attributed to this genetic mutation. It’s a constant worry.