The really sad part is we don't discover platforms like this one until after we have had the bad experience. I asked for "peer support" and never heard again from the social worker. I asked repeatedly for support when I ended up with stage two lymphedema. I was given cockamamie responses such as "no one else needs it" or "People are too ashamed to come forward." I was getting radiation during Covid. No one ever suggested online support. I can't believe that doctors and nurses don't know about Mayo Clinic Connect or SHARE Cancer Support or other organizations. The message to me was I was a complainer and I should be ashamed for having lymphedema!
I am glad to have found support, but women need the support from other women who have been through this from the moment they get their diagnosis.

You were very courageous to say no and mean no. I felt bullied into treatment. I had been through all the treatment when the father of a childhood friend wrote me saying, "I'm sure that your doctor will review with you all of your options and you will be able to make a decision that is best for you." I thought. "I had options?" No one ever discussed anything with me. It was their way or the high way. Doctors and nurses would shrug one shoulder (and it started to look rehearsed) and they would say, "It's up to you. It's you're body." And I knew they disapproved. How many years out since surgery are you?