← Return to I have a syrinx and can't find a doctor that knows much about it?

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@dmk

If you go to asap.org there is a list of dr’s on medical board that specialize they are mostly pediatric neurosurgeons who also care for adults as well. In our case we were told our child’s syrinx ,it couldn’t be drained as they said it would come back again and that where it is located in our child there was no room for a pain stimulator so his pain is managed with medication, and meditation to a degree. Went to neuro pt which has helped too and learned meditation. You can find people to talk with there as well that have same condition

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Replies to "If you go to asap.org there is a list of dr’s on medical board that specialize..."

Do u mind me asking where the syrinx is for you guys? Everything i see seems to be cervical....mine is thoracic and grew 5 times the size it was from 2022-2025