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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Mar 11 12:58pm | Replies (458)

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@psmlford817

I also have adhesive arachnoiditis. I had my L4 and L5 fused in May of 2018 then the following Nov. I have my S-I joint fused because the surgeon said I needed that done because I was starting to have bad pain in the sciatica. I had a stimulator in my back for over a year and it did no good at all. For about the last year I’ve had increasing pain in my right side lower back, right side S-I and down my right thigh down to my knee. My feet are numb. I went to a doctor because another doctor said I had neuropathy . The new doctor I went to got my MRI from 2018 and it showed I have arachnoiditis. If it would have been caught back when I was diagnosed with it, something could have been for it. It is now all through my lower body on both sides. I can’t walk without a walker. And some days I can’t even do that. If anyone can give me any advice please do.

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Replies to "I also have adhesive arachnoiditis. I had my L4 and L5 fused in May of 2018..."

Look up Dr Forest Tenant. He is the guru on arachnoiditis. I take Indomethacin. It actually helps.