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Fatigue is worse after radiation
Breast Cancer | Last Active: 21 hours ago | Replies (15)Comment receiving replies
I agree with the white coat conspiracy of silence. I told my surgeon NO to radiology. Surgeon kept going and want to set me up with the radiologist before surgery. I said no to radiology, period. They have their agenda to make sure they have good outcomes for their practice and the money making opportunities for the group. I have informed consent and say NO. We did all the statics for my stage/grade, no nodes and outcomes. At five years without radiation and with drugs there was only a 0.5% difference. There was a larger mortality rate at ten years and who know what other comorbidity that group of patients had but the statical difference was 2% difference. If you have a low stage/grade and have clear margins with your surgery they need to stop brutalizing women with too much treatment. As Dr. McDougall said breast cancer treatment is barbaric and brutal for women. I do not agree with all of Dr. McDougall thoughts but this one is sound with statics.
Replies to "I agree with the white coat conspiracy of silence. I told my surgeon NO to radiology...."
The really sad part is we don't discover platforms like this one until after we have had the bad experience. I asked for "peer support" and never heard again from the social worker. I asked repeatedly for support when I ended up with stage two lymphedema. I was given cockamamie responses such as "no one else needs it" or "People are too ashamed to come forward." I was getting radiation during Covid. No one ever suggested online support. I can't believe that doctors and nurses don't know about Mayo Clinic Connect or SHARE Cancer Support or other organizations. The message to me was I was a complainer and I should be ashamed for having lymphedema!
I am glad to have found support, but women need the support from other women who have been through this from the moment they get their diagnosis.
You were very courageous to say no and mean no. I felt bullied into treatment. I had been through all the treatment when the father of a childhood friend wrote me saying, "I'm sure that your doctor will review with you all of your options and you will be able to make a decision that is best for you." I thought. "I had options?" No one ever discussed anything with me. It was their way or the high way. Doctors and nurses would shrug one shoulder (and it started to look rehearsed) and they would say, "It's up to you. It's you're body." And I knew they disapproved. How many years out since surgery are you?
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Wow I wish I would have known this before I had radiation. I was stage zero with clean margins but there was a microscopic break in the wall. I really didn't think I wanted to do it.But the radiologist made a case that I needed to. I am so pissed off.