I am 77 yrs old started on Prolia 2022. My bone density results I had osteoporosis.
I took my Dr.’s advise and started Prolia. Unfortunately, I did not research the drug and all these side effects and problems that occurred if stopped. I am overwhelmed!!
Thank you!
@ladyjds
Hello, I’m sorry you are going through this. I know it’s very upsetting.
There is plenty of information on this site to help guide you.
Someone else has remarked that there is a discussion on this site called, stopping prolia(I think) that can help you gather information.
What side affects are you dealing with?
I’m speaking from experience when I tell you that you cannot just stop prolia, you must go on a relay drug to prevent rebound fractures. Yearly reclast infusions are best.
You will get a lot of good information here,
Take care
I am 77 yrs old started on Prolia 2022. My bone density results I had osteoporosis.
I took my Dr.’s advise and started Prolia. Unfortunately, I did not research the drug and all these side effects and problems that occurred if stopped. I am overwhelmed!!
Thank you!
Hello @ladyjds. Osteoporosis medications are powerful medications and many members are reluctant to start them. It is easy to be overwhelmed by conversations of potential side effects and bad experiences. Like any medication, patients have to weigh the pros and cons which can involve the risk of a severe bone break at an age where recovery could be difficult or potential side effects can sometimes seem common, but are a smaller percentage.
I combined your discussion with an existing discussion titled:
Hello @ladyjds. Osteoporosis medications are powerful medications and many members are reluctant to start them. It is easy to be overwhelmed by conversations of potential side effects and bad experiences. Like any medication, patients have to weigh the pros and cons which can involve the risk of a severe bone break at an age where recovery could be difficult or potential side effects can sometimes seem common, but are a smaller percentage.
I combined your discussion with an existing discussion titled:
@ladyjds
Hello, I’m sorry you are going through this. I know it’s very upsetting.
There is plenty of information on this site to help guide you.
Someone else has remarked that there is a discussion on this site called, stopping prolia(I think) that can help you gather information.
What side affects are you dealing with?
I’m speaking from experience when I tell you that you cannot just stop prolia, you must go on a relay drug to prevent rebound fractures. Yearly reclast infusions are best.
You will get a lot of good information here,
Take care
I appreciate you taking the time to respond. So much information out there on social media difficult to decide what is correct.
Aches and pains and since November knee pain. After PT - pain continued results from MRI - torn meniscus on right knee. Surgery scheduled. Left knee also problematic but not as painful as right. Due for my 6th injection in April but decide to delay to May to give me time to recoup from surgery. After reading about others side effects mine have not been as drastic but the longer I stay on Prolia and my age this drug will take a toll on my body. Thank you for your time and support.
You seem so young to go on Prolia. You can't just stop it after 1 year as you risk spinal fractures. Do check this out. You could look at the discussion between Dr Rubin and Margaret Martin on YouTube. Dr Rubin only uses Prolia for 80 year old.
I would like to know what drug your Dr intends to transition you on.
I have just started Prolio with a new M.D. I was without any medication for at least 5 years. At that time, I was Osteopenia for the hips and neck which had remained the same for five years without any medication.
The T and Z scores for my spine dropped from Ostopenia to Osteoperosis. So, I was upset.
When, I was on Fosamax, I simply did not have a decrease in the score. But, the M.D. Family Medicine doctor simply stopped the use of Fosamax. Then, I saw the decline and switched doctors.
The Bone Density exam is like a radiology exam. I follow the scores as well.
Probably any maintenance of bone density for me has been rigorous weight lifting, group exercise classes, swimming, and, outdoor bicycling. I am at the gym almost daily. If I am too tired for the gym, I do the 3 miles walk as a weight bearing exercise.
So far no injuries. I take preventive classes on how to avoid trips, slips, and, falls. Those are on You Tube as well. This is what I do for improving bone health, physical strength, coordination, and, aerobic capacity.
I have been on Reclast Fusion once a year for the past two years. Last year's Dexiscan improved T scores with the femur and neck, but my spine remained the same with osteoporosis.
However, I continue weight lifting, swimming, road and mountain biking, and the three-mile walk when I can't get to the gym.
Everything is paced and at my own rate; I have had no slips or falls. My balance has improved, and I walk fast. However, I have good running shoes with orthotics.
I am not an athlete; I am just an "exercise enthusiast" who wants to ward off potential disease and improve bone health. Plus, exercise keeps my mood happy.
I am 76 and registered for the Huntsman Senior World Games, St. George, Utah, in October 2025 for my fourth year!
Patricia
You seem so young to go on Prolia. You can't just stop it after 1 year as you risk spinal fractures. Do check this out. You could look at the discussion between Dr Rubin and Margaret Martin on YouTube. Dr Rubin only uses Prolia for 80 year old.
I would like to know what drug your Dr intends to transition you on.
Ok not sure if you want to know this. I didn't know anything about Prolia until l decided to stop it after my 4th injection. Well l have stopped but am now on Actonel. I was told after l stopped that l risked spinal injuries! I have lived with that for 5 months so l have been researching AMGEN, who make it and also the Data from our Australian Therapeutic Licensing Authority. 82 deaths and 2040 reports of adverse effects (most are fractures).
The Authority does not say it was Prolia only one single medication SUSPECTED.
So do not start it. Also in America when you get the information do they tell you it's made from the Ovary Cells from Chinese hamsters? Good luck to all of us. Jenny xx
I appreciate you taking the time to respond. So much information out there on social media difficult to decide what is correct.
Aches and pains and since November knee pain. After PT - pain continued results from MRI - torn meniscus on right knee. Surgery scheduled. Left knee also problematic but not as painful as right. Due for my 6th injection in April but decide to delay to May to give me time to recoup from surgery. After reading about others side effects mine have not been as drastic but the longer I stay on Prolia and my age this drug will take a toll on my body. Thank you for your time and support.
How long you can safely delay a scheduled Prolia injection should be thoroughly researched. Perhaps you could consult with your doctor or try to find some authoritative info. Best to look for research papers than rely on anything people say on social media sites.
I recall researching this issue when I was on Prolia and what I remember is that a delay of one month might not be a good idea, especially if you have been on it for a while. I no long have that research as I stopped Prolia almost 2 years ago. But the information is out there.
How long you can safely delay a scheduled Prolia injection should be thoroughly researched. Perhaps you could consult with your doctor or try to find some authoritative info. Best to look for research papers than rely on anything people say on social media sites.
I recall researching this issue when I was on Prolia and what I remember is that a delay of one month might not be a good idea, especially if you have been on it for a while. I no long have that research as I stopped Prolia almost 2 years ago. But the information is out there.
How did you stop it? How long had you been on Prolia. I have recently stopped Prolia but feel nauseas every day from my weekly Actonel. I guess it will pass.
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@ladyjds
Hello, I’m sorry you are going through this. I know it’s very upsetting.
There is plenty of information on this site to help guide you.
Someone else has remarked that there is a discussion on this site called, stopping prolia(I think) that can help you gather information.
What side affects are you dealing with?
I’m speaking from experience when I tell you that you cannot just stop prolia, you must go on a relay drug to prevent rebound fractures. Yearly reclast infusions are best.
You will get a lot of good information here,
Take care
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Like -
Helpful -
Hug
4 ReactionsHello @ladyjds. Osteoporosis medications are powerful medications and many members are reluctant to start them. It is easy to be overwhelmed by conversations of potential side effects and bad experiences. Like any medication, patients have to weigh the pros and cons which can involve the risk of a severe bone break at an age where recovery could be difficult or potential side effects can sometimes seem common, but are a smaller percentage.
I combined your discussion with an existing discussion titled:
"Prolia for osteoporosis"
- https://connect.mayoclinic.org/discussion/prolia-for-osteoporosis/
As @sondrachristo1 suggested, there is a discussion about potentially getting off of Prolia:
"Prolia discontinuation"
- https://connect.mayoclinic.org/discussion/prolia-discontinuation/
When stopping or starting a powerful medication like Prolia, it is best to do so with your provider.
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2 ReactionsJustin, thank you for your prompt response and information to further educate myself on Prolia.
I appreciate you taking the time to respond. So much information out there on social media difficult to decide what is correct.
Aches and pains and since November knee pain. After PT - pain continued results from MRI - torn meniscus on right knee. Surgery scheduled. Left knee also problematic but not as painful as right. Due for my 6th injection in April but decide to delay to May to give me time to recoup from surgery. After reading about others side effects mine have not been as drastic but the longer I stay on Prolia and my age this drug will take a toll on my body. Thank you for your time and support.
You seem so young to go on Prolia. You can't just stop it after 1 year as you risk spinal fractures. Do check this out. You could look at the discussion between Dr Rubin and Margaret Martin on YouTube. Dr Rubin only uses Prolia for 80 year old.
I would like to know what drug your Dr intends to transition you on.
-
Like -
Helpful -
Hug
1 ReactionI was told that Prolia is a lifetime medication and should not be stopped or if stopped- Reclast should be started.
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Helpful -
Hug
1 ReactionI have been on Reclast Fusion once a year for the past two years. Last year's Dexiscan improved T scores with the femur and neck, but my spine remained the same with osteoporosis.
However, I continue weight lifting, swimming, road and mountain biking, and the three-mile walk when I can't get to the gym.
Everything is paced and at my own rate; I have had no slips or falls. My balance has improved, and I walk fast. However, I have good running shoes with orthotics.
I am not an athlete; I am just an "exercise enthusiast" who wants to ward off potential disease and improve bone health. Plus, exercise keeps my mood happy.
I am 76 and registered for the Huntsman Senior World Games, St. George, Utah, in October 2025 for my fourth year!
Patricia
-
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Helpful -
Hug
4 ReactionsOk not sure if you want to know this. I didn't know anything about Prolia until l decided to stop it after my 4th injection. Well l have stopped but am now on Actonel. I was told after l stopped that l risked spinal injuries! I have lived with that for 5 months so l have been researching AMGEN, who make it and also the Data from our Australian Therapeutic Licensing Authority. 82 deaths and 2040 reports of adverse effects (most are fractures).
The Authority does not say it was Prolia only one single medication SUSPECTED.
So do not start it. Also in America when you get the information do they tell you it's made from the Ovary Cells from Chinese hamsters? Good luck to all of us. Jenny xx
-
Like -
Helpful -
Hug
2 ReactionsHow long you can safely delay a scheduled Prolia injection should be thoroughly researched. Perhaps you could consult with your doctor or try to find some authoritative info. Best to look for research papers than rely on anything people say on social media sites.
I recall researching this issue when I was on Prolia and what I remember is that a delay of one month might not be a good idea, especially if you have been on it for a while. I no long have that research as I stopped Prolia almost 2 years ago. But the information is out there.
Good luck.
-
Like -
Helpful -
Hug
2 ReactionsHow did you stop it? How long had you been on Prolia. I have recently stopped Prolia but feel nauseas every day from my weekly Actonel. I guess it will pass.