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Sjogren's Question

Autoimmune Diseases | Last Active: 1 day ago | Replies (28)

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@lisamann

I joke about "collecting autoimmune diseases" and my first one was primary Sjogren's. I was pooh-poohed by doctors for years but was finally taken seriously after I developed RA many years later.

I am seronegative for RA however I got a clinical diagnosis and I'm getting treatment. Autoimmune disease is rampant in my family.

Many people, including my family, start out with one disease and end up with a few more, sadly.

I hope you finally get the answers you need.

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Replies to "I joke about "collecting autoimmune diseases" and my first one was primary Sjogren's. I was pooh-poohed..."

Thankyou for responding! My first one was thyroid disease many years ago. I remember the Best Rhuematologists in our area told me it was just chronic fatigue. I know chronic fatigue is a real thing, but I told him that is not what I had it was something else.Thankfully a local woman doctor knew right away it was thyroid disease and prescribed me a low dose of synthroid amd I was better shortly after. This is the same thing though.The Rhuematologists giving me the run around and it is really bad because I believe I have Long Covid on top of autoimmune so I have so many symptoms.All my Family that has autoimmune has at least three and I only thought I had one, but now I believe I have several now. I think I was always use to not feeling that great, but now things are so severe it is out of control. My way of always dealing with not feeling Great was exercising all of the time. I am in too bad of shape to do that now because or the muscle weakness and inflammation.I was doing alot of running and walking. I probably should have been doing yoga and plates instead.