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Autoimmune Diseases | Last Active: 1 day ago | Replies (28)
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@j77 you can try for doctors at these organizations:
NORD. National Organization for Rare Diseases: https://rarediseases.org/. Or……
https://autoimmune.org/resource-center/finding-a-physician/. Or. . . . .
GARD Genetic and Rare Disease Organization: https://rarediseases.info.nih.gov/
These 3 groups have information about the different autoimmune diseases AND lists of doctors Who have specialized in treating these diseases.
Will you tell me about your phone calls?
Replies to "@j77 you can try for doctors at these organizations: NORD. National Organization for Rare Diseases: https://rarediseases.org/...."
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Thankyou so much! I will definitely try these places and let you know what happens. My Doctor was trying to get me into NIH for a suspected Autoimmune and NIH would only take me if I was officially diagnosed so this has been a tough road.