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Confused about my TBS score

Osteoporosis & Bone Health | Last Active: Mar 10 8:40pm | Replies (16)

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@gently

yeah, katgirl read this tomorrow or the next day when you feel better.
Your trabecular bones are probably thin. Dxa describes the little section of bone squared of in the images. The femur is 30 to 50% trabecular The lumbar spine is around 90% trabecular.
TBS isn't addressing density. Your TBS is telling us that those tiny bones have not disconnected from each other. There is structural integrity. We only know they are thin from the dxa report. TBS software uses different information from the exact same images as the dxa.
It is still the held opinion that HRT can have an effect on breast cancer. With genetic risk, I'd
avoid it. I'll never take estrogen because I was ever so happy to be free of it.
I'd rather see you on Forteo. Tymlos contains preservatives concerning because of you chemical sensitivity.
Evenity is the latest. It hasn't been real world tested, but most people are having good results.
Prolia is the rebound drug. It is good for those without kidney issues or side effects and take it for the rest of their lives. It is the only osteoporosis drug that promises to leave your bones weaker than if you'd never taken it. Reclast has been somewhat efficient at blocking rebound from Prolia.
In general, men regain their baseline production of testosterone after quitting supplementation.
When you stop taking Forteo or Tymlos you won't return to lower than baseline. But you would lose the gain.
Things are in flux with those two medications. There aren't studies for use beyond two years. And many physicians are uncomfortable prescribing it that way.
The endocrinologist I see has promised to prescribe Forteo until my T score is at -1, when I asked for a third year. I was quite pleased.
I always think "sealing the gains" is a strange construction. The anabolics stimulate the process of rebuilding bone. All the other medications stymie or stop the living process substituting it with systemic senescence.
I want to be sure that you have checked with the pharmaceutical companies to see if they will help with the payment. Both Tymlos and Forteo have such programs.
I am sometimes completely unclear in these posts. Be sure and demand answers wherever I'm remiss.
Happy Dreams.

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Replies to "yeah, katgirl read this tomorrow or the next day when you feel better. Your trabecular bones..."

Thank you so much for all of this information!

Both Tymolos and Forteo are out of reach for me Financially. Tymolos isn't covered at all by my insurance and the company's "patient aid" doesn't even come close to making enough of a dent in the price for me to buy it. They must have had a more robust offering when it first came out, because I heard about people getting it for free. That is no longer the case.
Forteo, while covered, would leave me owing 60% of the cost. They have no program to help with costs.

Evenity is covered because it is billed under the "out patient surgery" portion of my insurance, which, I apparently have very good coverage for, at least this year. Ditto for reclast. (Tymolos and Forteo are billed as high tier special prescription drugs. )

Evenity is SO NEW. I lost several years to a "new drug" that they didn't know all the side effects of when I was in my 20's and would like to not repeat that experience.

And so, here I sit. The only thing I know for sure is that I am hoping to get an REMS echo light scan in the coming months.

Good night!