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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 15 hours ago | Replies (358)Comment receiving replies
@luma22 I also have Clippers disease that impacted my voice, my balance, and my ability to walk. It seems depend on where the lesions grow on the brain.people have all different symptoms. Some are even diagnosed with something other than clippers. It is such an unusual autoimmune disease that most doctors have never heard of it.
I may have an article on Clippers that I can post here.
What symptoms did you have that led you to see see doctors. And what treatment are you on?
Replies to "@luma22 I also have Clippers disease that impacted my voice, my balance, and my ability to..."
I had the same symptoms as you and almost died in the hospital two years ago. The MRI lead the doctors to believe I had 6 stocks. A second neurologist confirmed I had CLIPPERS. The high dosage of steroids and the low prednisone (25mg) saved my life. I have been off of prednisone for 4 months. Yes, it causes health issues but it did save my life. I am now functional but do have some balance issues.
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Síntomas iniciales: mucho cansancio, temblor de manos.
Posteriormente, mareos, vómitos, taquicardias, dolor de cabeza, desequilibrio, temblores piernas, tronco y cabeza.
Tratamientos varios.
Actualmente, prednisona e inmunoglobulinas. Posiblemente, volveré a MabThera.
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