← Return to Newby in PNW Favorable vs Unfavorable Intermediate

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@jeffmarc

In a study I went to a few months ago they discussed. Cribriform And the fact that even if you had a 3+4 Gleason, it was much more aggressive than that, more like you had a five in one of your numbers. I have a link so you could listen to it if you’re interested.
https://www.urotoday.com/video-lectures/a-journal-club-for-patients-with-prostate-cancer/video/mediaitem/4452-unfavorable-histology-classification-aims-to-reduce-unnecessary-treatment-journal-club-jesse-mckenney-jane-nguyen-cornelia-ding.html
You should get genetic testing as soon as possible. You can get it done for free here
http://Prostatecancerpromise.org
They will send you a kit to see if there’s any genetic issues. Takes about three weeks and a genetic counselor will call you about the results.

Instead of ADT, you could use estradiol patches or gel. The patch trial just completed and showed it worked just as well as ADT but had fewer side effects.
Getting on ADT soon would prevent your cancer from growing for a little while at least.

You should get a second opinion to see if there are other options. These type of treatments would allow you to have radiation after you had the treatment HIFU , Cryoabalation , NanoKnife , TULSA PRO, HoLEP. Many people in this forum have used Tulsa pro and found that it was very effective. One person just yesterday mentioned that they had cribriform and they also had Tulsa Pro to eliminate the cancer, So you would possibly be eligible for it.

Are you dealing with a Genito urinary oncologist? Medical oncologist worked on all different types of cancer, whereas the GU Oncologist specializes in prostate cancer and keeps up with all the latest things going on. You might consider getting a second opinion at a center of excellence.

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Replies to "In a study I went to a few months ago they discussed. Cribriform And the fact..."

Thanks for the cribriform link. I had not read the difference between large cell vs small cell anywhere else. I'm looking forward to the consult at Fred Hutchinson and hope it doesn't come across as a sales pitch similar to the Compass consult. Only had a brief discussion with Mayo as I researched HIFU and was told the extracapsular extension eliminated that treatment as an option. With regards to genetic testing - I thought I covered that with my decipher score. Did I miss something? Maybe an odd thing to say or believe - but I honestly don't care if there"s cancer within me - as long as it doesn't interfere with my life as I know it......same goes for the various treatment options. So many choices & opinions. Just give me 20 more years of independence and I'll be fine.

Thank you for your input and I'm going to join this research today and get this ball rolling. Hopefully I will have results before my next PSA test in 3 months.