Why was Neuroendocrine Tumor Cancer removed from this site?

Posted by dbamos1945 @dbamos1945, 2 days ago

We NET cancer patients are “different”, some refer to us as Zebras. Our concerns follow a specific treatment path and I have depended on this group for guidance and support. Why has this topic not appearing as an option any longer? Please reply.
dbamos1845 (Bette)

Interested in more discussions like this? Go to the Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | 2 days ago

@dbamos1945, the NETs support group wasn't removed. That would be terrible.

Here is the link.
- Neuroendocrine Tumors (NETs) Support Group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

See all groups in alphabetical order in the Support Group directory
https://connect.mayoclinic.org/groups/

Colleen Young, Connect Director | @colleenyoung | 2 days ago

@dbamos1945, I also see the NETs support group listed as one of the groups you follow: https://connect.mayoclinic.org/member/00-29c256eba3c81194305782/groups-and-pages/#ch-tab-navigation

You can find tips about how to find things in the Help Center https://connect.mayoclinic.org/help-center/

If you have further questions or there was maybe a technical problem, feel free to send me a message using this form: https://connect.mayoclinic.org/contact-a-community-moderator/

kevinmonroemi | @kevinmonroemi | 2 days ago

Just no new postings today as far as I can tell

Colleen Young, Connect Director | @colleenyoung | 2 days ago

In reply to @kevinmonroemi "Just no new postings today as far as I can tell" + (show)

@kevinmonroemi, that may have been the situation. If there had been no postings in a 24 hour period, then the NETs activity doesn't show in the Digest email. That may have been what @dbamos1945 was referring to, thinking the support group had been removed.

I see there was activity in the NETs group today, so rest assured, it will appear in the Digest email tomorrow. Thanks, Kevin.

And for everyone:
You don't need to wait for the daily Digest email. You can see activity in the support groups you follow using the onsite notifications. Here's how:
1. Scroll to the top of the page.
2. Click the bell icon.
3. See all notifications of the groups you follow.

Learn more here:
- How to use onsite notifications https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/how-to-use-onsite-notifications-stay-connnected/