Looking for recommendations to find relief for foot pain due to neurop

Posted by gary1968 @gary1968, 1 day ago

I’m 56 and have been trying to deal with neuropathy pain in my feet and nothing seems to work. Done PT, injections, special orthotics and nothing seems to help. Can anyone give me suggestions on what to use

Interested in more discussions like this? Go to the Neuropathy Support Group.

I wish I could but I’ve also tried everything as you have, and nothing has helped me either.
My feet hurt so bad that I can’t step on them at times.

REPLY

say, lidocaine patches can be very effective on the feet for pain. Not a remedy for the neuropathy, though.

REPLY

Hi Gary @gary1968, I would like to add my welcome to Connect along with @harley22, @gently and others. Sorry you haven't found anything that helps with the neuropathy pain in your feet yet. Emphasis on yet and hoping you find something soon that provides some relief. I'm not sure if you have seen the following discussion but it might be worth scanning through the member comments to learn what others have shared:

-- Extreme pain in my feet. Neuropathy: https://connect.mayoclinic.org/discussion/extreme-pain-in-my-feet-neuropathy/

The Foundation for Peripheral Neuropathy also has a list of complementary and alternative treatments that you might want to check to see if there may be something you haven't tried - https://www.foundationforpn.org/wp-content/uploads/2024/11/Complementary-and-Alternative-Treatments.pdf.

REPLY

Hasn't your doctor offered anything to help you at least deal with the pain? I've seen several neurologists, and 2 neurosurgeons over the past ten years, and it's taken my regular doctor of over 25 years to be the only one to really offer up any kind of help.
I started taking gabapentin over 9 years ago, and while it doesn't stop the pain, and my GP told me it wouldn't, it helps to dull the pain. I don't remember what the dosage was when I first started taking it, but he's had to gradually increase it to the point that I'm taking 3600mg a day, and I'm still in pain from the neuropathy. He won't prescribe a higher dosage than that to anyone.
I can't imagine how bad it would be without it.

You need to go to your doctor and ask him/her for the help that you deserve. This condition is permanent and can't be cured, it's something that we have to tolerate, whether we like it or not.

REPLY
@mrmacabre

Hasn't your doctor offered anything to help you at least deal with the pain? I've seen several neurologists, and 2 neurosurgeons over the past ten years, and it's taken my regular doctor of over 25 years to be the only one to really offer up any kind of help.
I started taking gabapentin over 9 years ago, and while it doesn't stop the pain, and my GP told me it wouldn't, it helps to dull the pain. I don't remember what the dosage was when I first started taking it, but he's had to gradually increase it to the point that I'm taking 3600mg a day, and I'm still in pain from the neuropathy. He won't prescribe a higher dosage than that to anyone.
I can't imagine how bad it would be without it.

You need to go to your doctor and ask him/her for the help that you deserve. This condition is permanent and can't be cured, it's something that we have to tolerate, whether we like it or not.

Jump to this post

I do take gabapentin but it really does nothing for me.

REPLY
@gary1968

I do take gabapentin but it really does nothing for me.

Jump to this post

I have started using my leg air pressure cuffs for 1 hour to help with neuropathy during bed time. My doctor prescribed using the leg pressure cuffs for my leg circulation issues.
I turn on the pressure machine and lay back watching TikTok on my phone and I am able to fall asleep. I am also using a C pap machine for sleep apnea. I also set the ceiling fan to low speed for 1 hour to help reduce the room heat.
My age is 70 my pup still walks me daily and I routinely visit the gym for two hours of light exercise to help with weight issues.

REPLY

My husband and I both have the misfortune of peripheral neuropathy and Raynaud's syndrome in both hands and feet. We readily admit that what goes on with our feet is the worse of the two body areas, however for my husband it is pure hell. You sound like you fall under the hellish world of what he has been dealing with for years, with the last five years or so being pure hell on earth: intense burning, aching, throbbing, non stop pins&needles, Pain Level 8-9 out of 10. Like me, his system is unable to tolerate prescription drugs such as Cymbalta, gabapentin, etc. Severe side effects. Vick's is a part of what our cultura puertorriqueña incorporates for a myriad uses, not just for rubbing on for chest colds as TV commercials portray. Neither of us have used it in decades (we are both 76), for me because of the odor. In desperation one afternoon, not wanting to have my hubby endure yet another night in PN hell, we went to our local CVS and purchased a bottle.
He was encouraged by the info that he had gleaned during his online googling of ways to deal with a variety of pain. That night he gently applied the odiferous ointment over and under each foot, making sure he had all the toes carefully covered (including between toes) up to ankles. He covered each foot with an old pair of socks that had stretched out of shape. Fit each foot nicely😊. That night, he slept without having the hell pain awaken him🛌. He was SOLD! The hellish burning/aching does not invade very often, but when it does, the Vick's is used, sometimes not banisihing ALL pain but at least diminishing the intensity of the burning ache. The tingling PN is always present. Nothing either of us or anyone else can do about that, except that we have included Alpha Lipoic Acid in our daily regime. No, it does NOT eliminate PN. But it sure does make it more tolerable, less agonizing. We don't think about what our pain issues would be at this stage in our lives if ALA were to be excluded -- uh-uh!! He uses Vick's to ease pain of osteoarthritis and rheumatoid arthritis (yes, he has both) in his hands; I bought him white cotton gloves to place over his Vick'sed hands. I tried his Vick's therapy only once, and it did help reduce the intensity of the burning nerve pain that I sometimes get from CRPS (Complex Regional Pain Syndrome, resulting from trauma to left foot). But I can't tolerate the stink of it so no longer use it. (I have CNS disorders which have affected olfactory and gustatory senses; hubby goes to guest room when he has slathered the ointment at night.) My podiatrist created a compounded pain cream, which was filled by an out-of-state compounding pharmacy. Pricey but helps with the intense pain in left foot (the one with CRPS and 3 horrid neuromas AND a hammertoe that at times orchestrate a cacophony of intolerable Level 9 pain). Not one doctor has been able to address what he endures. Since he is type 2 diabetic, the use of those devices that provide heated water therapy is contraindicated. BUT I got him a basin to fill with tolerably very warm water with Epsom salts. He finds that soothing. When my feet are especially painful (I also have Complex Regional Pain in my left foot/ankle) I find that placing my large heating pad over them is comforting, and it does help with the pain. ELEVATING legs is very helpful. GENTLLY MASSAGING the feet, as well as GENTLE FOOT EXERCISES brings relief. Our TENS appliances died and we're looking to replace them b/c they were useful as well. NON-BINDING SOCKS and WELL PADDED ATHLETIC STYLE SHOES are must-haves for us. We each have a pair that is worn in place of slippers, and I purchased a pair for outdoors. We NEVER go barefoot! Make sure the TOE BED allows your toes to SPLAY APART so you can do that several times a day as exercise for your digits and the wide toe bed provides a safe haven for painful digits. I buy my footwear a half size bigger to allow space between toes and front of shoe, thus toes are not being "hit" with each step I take. We both find that leather shoes are a thing of the past for us: way too restrictive and squeezes the tops of feet. My husband and I donated all socks that "bound" the foot and ankle. In TJ Max and Walmart, we found socks at very affordable prices that do not bind feet and are thick enough to provide welcomed cushioning (and warmth since we have Raynaud's).

These are avenues by which we address what we face in our daily lives. We celebrate days when we are both well enough to leave the house! On days that we're not, we respect and accept that. If you can tolerate pain meds, then I hope they help you have a better quality of life. Just keep in mind that should you want to stop taking a pain med, please don't go cold turkey. Ask your doctor for help in tapering off. I know all to well how overwhelmingly difficult it is to taper off medications. And going cold turkey can have serious, even dangerous consequences. KEEP A JOURNAL of ALL meds, noting the dose and any problematic symptoms, etc. I do this with all meds, especially since I did experience horrific issues with two medications in particular. I sought professional guidance, received it, and over a period of time reached my goal, but not without problems. Not once did I reconsider my decision to cease the meds.

I wish you days when you can feel less pain and thus can find pleasure in the simple things in life. Living with chronic, relentless pain is definitely exhausting and challenging on so many levels, but do your best to incorporate alternate means of helping yourself. 💖. Practice self care: soothing music. A small bunch of your favorite flowers -- even one or two is great! Burn your favorite scented candles. Enjoy a treat of a favorite sweet For me, it's Chobani vanilla yogurt, sprinkled with chopped toasted pecans, and a squirt of Lite Reddi Wip -- yum! Or get a gentle pedicure. I always go to the same salon, ask for the same young woman who has come to respect that I do NOT want intense massage, and NO nail polish since my doctor wants to be able to check the state of the Raynaud's. Figure out what works BEST for YOU and then DO IT. You deserve to make yourself FEEL GOOD, so PAMPER yourself.😊

Best of luck to you.👍🏼😊💐

REPLY

Hi Gary! @gary1968 I am having some good luck wearing those new HIKE shoes (barefoot shoes, grounded shoes). Not sure why, but things are better...help get through the period between pain shots. I actually went almost 6 months, and was able to move from walker to cane. Also, my pain management doctor does injections lower than epidural..
Medicine seems to go into my SI area and do more good.

REPLY

Have you tried LYRICA? This is an amazing medication that is like Gabapentin, but much better!! I strongly suggest this and/or a new off script therapy for nerve pain is a low dose of suboxone. I know it seems funny but, it works! Just finding a Dr that is willing to either do the research or has done the research on this new treatment! IT WORKS!! I hope you’re able to get the help you need!

REPLY
@gary1968

I do take gabapentin but it really does nothing for me.

Jump to this post

How much are you taking? Everyone's different, so you might need a higher dosage.

REPLY
Please sign in or register to post a reply.