← Return to Concerned Caregiver : Oral SCC lymph nodes involved

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@sepdvm

Hello @surbhimadan.
I second everything that hrhwilliam has said. He has more experience in oral cancer and the surgery needed. I highly recommend seeing a head and neck oncologist, not just a general oncologist who also sees head and neck. You may have to travel for that. Asking for a referral to a large cancer center or referral teaching hospital is very reasonable with this negativity by her doctors. I drive 10 hours to Mayo Clinic in Rochester MN for the wonderful head and neck oncologist and great ENT surgeons who are treating my ear based metastatic SCC. 30 years ago we found a surgeon at Ohio State James Cancer Center who could do a surgical procedure for my dad's oral SCC that no one locally was doing. And there are new treatments available now especially with immunotherapy that are recently approved for either recurrences or even original treatment. I have finished one drug 2 years ago that I was on for 2 years and it has successfully caused my immune system to destroy the kidney and lymph node metastases that had developed. So there is always hope. You need to be at the right place to be offered the best treatment. Also researching complementary therapies to enhance your immune system, improving your diet, etc can all help in your response to treatment. Purchase this book......it is one I have shared with many people and use the suggestions daily for 13 years: How Not to be My Patient by Dr. Ed Creagan, a Mayo palliative care physician. The more educated you both are about her condition and treatment options, the better you can discuss it with your doctors for your best outcome. How far are you from MN?

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Replies to "Hello @surbhimadan. I second everything that hrhwilliam has said. He has more experience in oral cancer..."

Thank you very much for your detailed thoughts on my concern and for sharing your experience.

I am based out of CA on the West Coast, but my parents are in India, so we are getting primary care there as they will be out of Insurance in the US. While the doctor is open to immunotherapy, it did sound like it is not the first line of treatment and until scan/MRI shows additional problem beyond what surgery report has been.
I have been to 5-6 doctors around, and it seems there is a guideline in India that doctors are likely to adhere to. I didn't think about focusing on head and neck oncologists before. I will look into it. Do you know if doctors in Mayo Clinic in Rochester MN would do tele-call for a second opinion?

Thank you for the suggestion on the book as well.