← Return to Does anyone else have a diagnosis of EGPA vasculitis?
DiscussionDoes anyone else have a diagnosis of EGPA vasculitis?
Autoimmune Diseases | Last Active: Mar 10 2:47pm | Replies (14)Comment receiving replies
Replies to "I am fortunate 3 shots of Nucala kept me under control (over last year). We recently..."
I have been on NUCALA for EGPA for over a year, which has done a good job of controlling symptoms and allowed me to slowly wean off of prednisone. What made you switch to Fasenra?
I have had difficulty this winter with sinusitis, almost like my earlier years prior to developing full blown EGPA . Tried all the usual sinus rinses, (even with budesonide in it, ) also antihistamine ( dried me out but did not stop congestion), XClear nasal spray is most helpful. Adding a humidifier to the bedroom helped a lot, and I sleep with bed wedge to raise the level of the head. I am taking Famatodine 20 mg (Pepsid) for a possible condition of silent reflux which was mentioned along the way of my journey. I had dismissed it since I do not have acid reflux often enough to treat, or so I thought! I will let you know if this improves my voice, little cough, blocking Eustachian tube, loss of sense of smell, loss of sleep from waking up often, etc. EGPA provides a litany of complaints, doesn’t it? I know others out there have far worse and am grateful for Nucala.
Good luck in zeroing in on your ailment and a treatment. We are all in this boat together, rowing hard!
MTH13