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Eustachian tube dysfunction and balloon dilation

Hearing Loss | Last Active: Apr 5 1:43pm | Replies (39)

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@jcj123

So sorry to hear so much trouble and no solutions. I wanted to update since it's been awhile. The dr at LIJ in New Hyde Park (head of ENT) DID give up on me. She referred me to a Eustachian tube "expert" specialist in Boston (5 hours away) So I called them because I can't give up. They want me to send all the records of my last 3 doctors I've seen regarding this issue. He'll read them and decide if he'll see me! ;(((( He's supposed to be good. His name is Dr. Allan Poe I think. Anyway, someone in his office who I spoke to told me there's a dr in NY who worked with him and has the same expertise and I should try her first since I live in NY. Well, that was nice of her. So that's who I'm seeing now, this dr in NY. (still collecting all my records) I saw her 1/2. I liked her. She sent me for a CT scan (which no other of the 8 doctors ever did) and then a VEMP test. I'm seeing her tomorrow (3/10) and see what she says. I will be a very strong advocate for myself tom because I don't think she's addressing or listening to my most distressing issue which is the ETD. I will update. Meanwhile no hearing or very little in left ear, hear screeching noises maybe due to residual hearing which isn't translating to words, horrible tinnitus in left ear, Eustachian tube dysfunction in both ears, can hear well out of right ear but MY OWN voice is muffled. Thanks so much for reading all this :)))

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Replies to "So sorry to hear so much trouble and no solutions. I wanted to update since it's..."

Please tell me the name of the Dr in NY that Dr. Poe said she worked with him. I have been in the same condition as you with no help for 4 yrs.