Has anyone had diarrhea with radiation?
Has anyone in the Forum had RT to their lymph node basin only and then experienced diarrhea during treatment? How did you handle it?
I’ve just completed my 15th VMAT IMRT treatment to my lymph node basin only. I started experiencing diarrhea two days after the 14th treatment and hours after the 15th treatment. My oncologist doesn’t believe that it’s connected to the radiation because he’s avoiding the bowel and previously treated prostate bed.
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Imodium is your friend. While undergoing radiation I alwas had it with me where ever I went. I still keep it in my truck because every once in a while I have some issues. Works very fast.
The taste isn't horrible to me. The instructions say to dissolve it on your tongue I just swallow it.
Well, it’s in liquid form - chicken flavor - since the cat won’t do pills. It probably doesn’t taste anything like chicken.
Thanks, Scott M! This gives me hope. 10 days since last treatment and still dealing with diarrhea and trying to manage with Imodium and Pepto without risk of causing a blockage (which my provider warned me about).
Thanks. I too learned, as you say, "not to trust a fart" and get to a restroom STAT. I learned that the hard way, and having once experienced the worst possibility, I will do anything to avoid it again, which means getting up during the night at the first hint of tummy rumbling and ditto for anytime during the day. Treatment ended 10 days ago, and I realize it will be an ongoing process of recovery, but for how long I'm not sure.
Good luck with your diaahrea, I had it 4-6 times every night during my 6 weeks of radiation Imodium did nothing for me , a prescription called diphenoxylate atropine only occasionally helped, just finished radiation and have still have 2-3 issues each day , DR said it could take several more weeks for my colon to heal
Congratulations, graybeard, on your SUCK -cessful completion of treatment!
Yes, it sucks, but your diarrhea should subside; mine lasted about 2 weeks after completion and then suddenly stopped; so far so good.
Ever decide on second opinion for Lupron shot?
Hi Phil, yes I discussed a second opinion on the Lupron and most Dr follow the guidelines so I will reluctantly get my second opinion shot in a few weeks. Oddly enough my bladder has become more active which has not been a big problem until lately?? You ever use a pump? I was inspired by a recent post to exercise my snail but all I get is a decent looking erection but not stiff more like a store bought rubber toy pecker
Lots to unpack there, bro! Well, the radiation will definitely play bladder games. I found that my sense of urgency is greater - when I gotta go, I gotta go NOW! But even that is better….
I did try a pump and hated it. It made my unit swell but the base remained shriveled cause I never took the 5 mgs Cialis daily after surgery.
Others will have more input than me but I would go straight to the Trimix injection and not waste time on penile rehabilitation at age 78….rehab for what?
You should ask your Lupron doc if you can use Trimix while on ADT or if you should wait. My sense is that you can but I cannot say for sure. Best
Phil
There are psychological approaches to dealing with an overactive bladder, but there's also a pill (Myrbetriq) that can relax the detrusor muscle and cut down on the nighttime bathroom trips significantly. It's a low-/no-side-effect medication, and doesn't conflict with our standard PCa meds, so it might be worth discussing with your care team (at least as a short-term helper).
What happens with radiation is that it sometimes fans out a bit from the prostate into the bottom of your bladder (it keeps spreading for a few weeks after the end of treatment, according to my RO). That's both good (it might catch any stray cancer cells that have made it just outside the prostate) and bad (it can cause mild irritation). Unfortunately, your parasympathetic nervous system misreads that mild irritation as a full bladder, and sends a "LET'S GO NOW!!" signal to your detrusor muscle, which contracts involuntarily and squeezes the bladder, so you're essentially fighting yourself: you're trying to hold the urine in with your sphincters and pelvic floor muscles while you're involuntarily trying to push it out with the detrusor muscle.