I found the post earlier but now it seems to be gone. With what I remember you had scans showing no evidence of decease and then one that did all of a sudden. From what I have read scans are not 100% kind of like CA19. I read where one poster was told that inflammation can hide a growth like it can cause a false high. And I even read where some medications can cause high CA19 levels. I have no confirmed results with either of those but it would seem possible that the reason I have no evidence of decease on my scans and my weight loss indicate other wise. I feel bad for you with the news after having a good run. We have both made the choice to just wait for the day for it to return but I know I told my nurse that a high CA19 could be caused by infection and she was very sad at that high a number and did not believe it until the next blood test showed that to be true. And I struggle every day with my choice of no invasive treatments and catch myself wanting to modify that as to not include minor invasive treatments. You have been in my thoughts all day trying to find the words as this is what I could face any day. I was trying to think of what I would like for someone to say to me. About all that I was able to think of was I hope you do not suffer at all. That is my biggest wish I have for me. And who knows how long we can go on even with hospice. Some folks have to renew as they run out of time. Continue to find the things you like to do on your good days. I do that now. And even on bad days I have my sons and that is win for any day.

Wishing you and everyone many more good days dealing with cancer.