My 23 year old son was diagnosed with Lance Adam’s Syndrome in December 2024. He overdosed and was without oxygen for 55 minutes, after he was resuscitated he went into cardiac arrest, was on a ventilator for 5 days. He started jerking before he came of the ventilator which got worse when he came off. He is currently on Keppra, baclofen, clonazapam, and gabapentin. He is able to walk with a walker most of the time. He is jerky in his legs, arms and hands. He has trouble talking, speech said that was due to processing. We do like his neurologist, I know this is a rare condition and there is not a doctor who specializes in LAS, but does anyone know of a doctor that is more familiar in treating this? We are in NC and willing to travel.