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DiscussionIs anyone else not getting surgery?
Aortic Aneurysms | Last Active: Mar 10 11:31pm | Replies (12)Comment receiving replies
Replies to "It is upsetting that there are no support groups for individuals who do not want AAA..."
I'm so very sorry to hear about your situation.m and thabk you for your comment to my post. I've never had an aortic rupture but I have had a Type B dissection when I was 54, that went from my aortic arch down to the top of both legs. I spent a week in intensive care until I was stable enough to go home. They couldn't operate on me for 5 months. I wasn't strong enough or stable enough. I had 2 very long surgeries with long recoveries. One at 54 y.o. and the 2nd at 60 y.o. - just perfectly coinciding with the start of Covid! I'm 65 now and still have my original ascending aortic aneurysm that I was diagnosed with at 32 years old. Who would've thought?
It's my understanding that 90% of people who experience a ruptured aorta don't make it into surgery. Sixty to 75% don't make it to the hospital. For me, I don't really think it would be a bad way to meet the afterlife. There are many worse ways in my mind. Like you, quality of life is a priority for me. I've already lived longer than I thought I ever would. I was diagnosed with Marfan Syndrome at 24 years old and the life expectancy was roughly 42 years old, at the time.
I wish you peace of mind, joy of heart and tranquility of spirit.
I experience them daily in varying amounts and I'm content with whatever the future brings to my doorstep.
Take care.
Terry
I had a complete Type A-1 aortic dissection at age 50 in 2015. It was the most painful I have ever experienced. It felt like someone was peeling the skin off my back. You will know it. If you have a complete rupture, you will exsanguinate fairly quickly. I don't know what percentage of people die quickly vs. dissect slowly. Untreated, the mortality rate for an aortic dissection is 1% an hour. Peace.