Thank you for the kind words as always Carrie40. I think my medical staff have trouble understanding palliative care from hospice. I told them I wanted and DNR but I wanted any no invasive medical treatment for things like infection to feel as good as I can and enjoy the time I have left. But they just seem to want to keep increasing my pain meds. Thing is I am maxed out now where I can still drive and go out and enjoy myself on the days I feel well enough to do so.

My primary care doctor is on the board of the hospice I will use. It is a sister group with my palliative care and they share the same building. I still have a cardiologist and a gastrologist. But the palliative care nurse did admit that PANCAN was not common and they do not see much of it at all. I think they are finally starting to spend more time with testing on me when they totally missed my infection. And I think they are calling someone when they don't know for sure.

Best of luck to all dealing with cancer.