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Fatigue is worse after radiation

Breast Cancer | Last Active: 22 hours ago | Replies (15)

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@wellgirl

Yes, I am furious about those lymph nodes being removed. Soon after the surgery I refused to go back to her. That surgeon was terrible for so many reasons.

At the time I was over weight, so she should have known I was at high risk for lymphedema and taking out so many lymph nodes would put me at a higher risk.

There was no good reason for it. I get riled up thinking about it. Then when my arm started feeling funny and I complained to the oncologist she said, "Oh, that will be there." I asked, "How long?" She said, "Longer than you'd like." She acted like it was no big deal.
I sent a message to the nurse navigator who didn't reply for three weeks. She told me she had been on vacation. She was glad I was doing well. I thought, maybe I'm just a complainer.
When I kept complaining, the oncologist sent me to a PT who wasn't trained in lymphedema.
I didn't realize I needed someone certified in lymphedema therapy. When I found out that I needed a lymphedema therapist COVID had started and they didn't want to give me an appointment with the lymphedema therapist. I threw a hissy fit and said it was an emergency.
By this time my arm was 20% larger than my other arm and I was into irreversible lymphedema.
It looks a whole lot better now but I have to wear compression on my arm and hand 24/7 and I use a pneumatic pump.
It took a while for me to do it, but I finally went to a major cancer Center in Boston. What a difference in care!

I never heard of two surgeries, one for the lymph nodes. They did it all at the same time. I woke up on September 20, 2019 with no breast and missing 26 lymph nodes. I don't know if it was the anesthesia or just a reaction to the whole thing but I went into a tailspin and got very depressed too. Considering the number of women I have heard from on this platform and elsewhere who get depressed after BC, you'd think doctors would be more sensitive to that and reassure us that it was a normal reaction. Like you, I felt alone and thought I was going crazy.

Here's the Qi Gong class. https://events.aarp.org/event/AARPRITaiChiMarch182025/summary

Here's Moving for life https://www.movingforlife.org/classes/

I looked up breastcancer.org It looks awesome. You also might be interested in SHARE cancer upport. https://www.sharecancersupport.org/

I hope this information helps other women too.

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Replies to "Yes, I am furious about those lymph nodes being removed. Soon after the surgery I refused..."

Hi
I hope you joined the zoom meetings.Because then we can actually see each other. They are on monday nights and friday afternoons. I usually do monday Night. Oh my god I can't believe What that doctor Did to you. My
Surgeon did not want to do my lymph glands until he had my pathology back which I am glad he waited. Fortunately.
I worked in the hospital In the operating room I used to do the Inventory and purchasing so I knew the surgeons and mine was amazing. I really feel for you what you Have been through it's just Wrong. It sounds like overkill. I had dye injected into my breast in nuclear med radioactive tracer, then in the o.r. a green dye was injected and it lights up the nodes that the tumor would drain into. In my case only I think he said 4 lit up so they only took the first one it was cancer free. So no need to take more. I would be extremely depressed too if I had those circumstances.I'm so sorry. Thank you so much for the links. Hopefully today is a better day. The sun is out today here and we're going up to 9 degrees so my plan is to go to the park for a walk today. Hope your day is good .💗