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Polymyalgia Rheumatica (PMR) | Last Active: 6 hours ago | Replies (24)

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@bravo1

I'm not sure if my method of tapering will help. I hope it does. After trying to taper too fast my body could not handle it and my PMR symptoms were bad. So I decided that slow was the way to go. It does take patience on our part. I was "officially" diagnosed last year in July, but I think I had PMR since April or May. I just didn't realize it.
Ive managed to get down to 8mg 4 days of the week and 7.5mg every other day for 4 weeks.
Before I was taping down 1mg per week. Too fast!
My body is still sore in the AM especially after exercising or physical activity day before. But I'm tolerating the pain for now.
That's my input. Everyone is different but I hope it helps.
Be patient and stay strong!

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Replies to "I'm not sure if my method of tapering will help. I hope it does. After trying..."

John, Volunteer Mentor | @johnbishop | Mar 8 1:25pm

Welcome @bravo1, Thanks for sharing how you taper. We are all different and it definitely helps when we can share experiences. Wished I would have paid more attention my first time around with PMR that took 3 and half years to get off of prednisone with the last year going back and forth between 1/2 mg and 1 mg until I was finally able to stop taking it with minimal aches when I got up in the morning.

Have you made any lifestyle changes that help?

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