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Sjogren's Question

Autoimmune Diseases | Last Active: 2 days ago | Replies (28)

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@mcmak444

I have had all the same symptoms. I was initially diagnosed with fibromyalgia, and now they are working me up for Sjogren’s.. It was my primary care doctor that told me that 20 to 40% people test negative for Sjogren’s despite having it.. I went back to the rheumatologist, and she agreed based on my symptoms, including parotid gland swelling, and all of the other symptoms of Sjogren’s. It’s been hard for me, but I’ve learned to advocate for myself. We know when there’s something wrong with our body and we must advocate. I’m also HBLA – 27 positive. Which is a gene that put you at great arrest for autoimmune disease diseases. I only found that out because I had Uveitis 3 times and my ophthalmologist told me to get tested for it. Hang in there, advocate for yourself…. Our healthcare system does not work well and unfortunately, they send you to multiple specialist who can’t seem to put the puzzle pieces together. ❤️

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Replies to "I have had all the same symptoms. I was initially diagnosed with fibromyalgia, and now they..."

I am so sorry you are going through the same thing. Fibromyalgia was brought up by one Rhuematologist. I think covid brought on every underlying Autoimmune and virus in my body. It is so scary because of the walking issues and weakness all over. My hands are extremely weak now. I am trying to advocate for myself and just going from Doctor to Doctor. It is like you have to figure it out yourself. Thankyou for the Great Information! I am praying for you!