Partial thyroidectomy should I do it? How long off from work?
Hello, I am a 61 year old female who had my right tonsil removed in February 2024 as a precaution, as it was larger than the other one, and I was having some discomfort on the right side only when I yawned. It came back positive for HPV 16 cancer. I underwent 33 treatments of radiation and am doing quite well. I’ve had 2 PET scans since which showed hot spots on the left portion of my thyroid, after the first PET scan I had an ultrasound in April 2024 and was told to watch it for a year. This revealed a 1.3 cm nodule with a TI-RADS score of 4. In September my ENT suggested we do a FNA and test it just to see so we could rule out cancer more of a peace of mind scenario. Afirma testing showed Bethesda 3. The Afirma genomic sequencing came back suspicious which leads to a 50% chance it is cancer and is recommending a partial thyroidectomy. Has anyone here elected to a wait and see approach? I’m scheduled for surgery on Dec. 3.
For those who have had surgery how was recovery? How much time did you need off work? My ENT is saying 3-5 days. I manage a restaurant so I’m on my feet, moving and talking a lot. Grateful for any input on your experience and thanks in advance.
Interested in more discussions like this? Go to the Thyroid Cancer Support Group.
I had 1/2 of my thyroid out.. the quick frozen section looked at by path while I was still in OR was negative, so the other side was left in. When I went to get my stitches out , the final path said I had follicular thryoid cancer and I had to go back in to surgery to have the rest of the thryoid removed. Not fun.
You could prob go back to work in 3 days, but anesthesia makes you very tired and it takes the body time to eliminate it from all your cells. And the tube that is in your throat during surgery can irritate the throat and make it uncomfortable to talk a lot .
I had a small tube in my in the lower neck (called a jackson pratt) to collect blood for about a week. If you have that you will prob not want to work but you could.
Wishing you well. There is a support group Thyca.org you could join for more questions/answers.
That was probably a miracle.
zygote, do you have to repeat PET/CTs to check for bone mets. If yes, how often.
Initially after thyroid surgery I had scans with radiated iodine for about 4 years and showed no mets .
thanks.
I had my left side of my thyroid taken out and six months later there is an 8.5 mm node in the right side. Hope it is not fast growing but how could they miss it on a scan? Going in for aspiration in two weeks.
I had a 15 mm nodule and a 9mm taken out in July. Now those I knew about for 10 years and grew slowly. They took out the left side of my thyroid. Them eight months later I have an 8.5 mm nodule that wasn’t there on my May 2024 scan. Scary because this one is fast growing. Getting a biopsy next week.
Sometimes, especially for those over sixty, thyroid cancer can become Anaplastic or ATC. It is rare, roughly 2% of all thyroid cancer cases but it is fast growing and requires the best people to combat it. I am hoping that is not the case for you. I lost one very good friend to ATC.
Sorry, don't mean to put you on edge. Let's get this figured out and treated quick.
Yes going in next week to get it biopsies. Hope they just missed a slow growing on on the backside of my thyroid. We’ll know soon. Wasn’t in two previous scans.
@twintwo2 great question and I wonder too! Here's my story, I apologize for the length, but if what I'm going through resonates with anyone else, and maybe helps, that's all that matters! What I do know is that since having CoVid in winter 2020, the first vaccine in April 2021, the second vaccine in late 2021, I was not feeling good at all. I was in and out of the doctor constantly with a lot of neck, leg and back pain, exhaustion, eye issues, digestive issues, headaches, dizziness, chronic cough, stiffness, etc. After marginal results from my Rheumatologist's recommendations, I went to a functional medicine doctor in late summer 2021 who diagnosed me with Hashimoto's along with several deficiencies. They put me on a no gluten diet, low sugar, and supplements and I kind of started to feel better, but not completely. I was also exercising 3-4 times per week and always felt exhausted during and afterward. My mom suddenly was ill in summer 2022 with Lung cancer that has metastasized to several organs, I was her primary caretaker, so I put my health on the back burner for a while. She passed within 4 months, and I head to the doctor in early 2023 with enhanced symptoms. I finally had a chest Xray for pneumonia and ended up finding the nodule in my thyroid. Ended up getting diverticulitis in April 2023, which landed me in the hospital for 5 days, came out had the FNA, then ended up with CDif, hospitalized again for 4 days in May, FNA showed Hurthle Cell Neoplasm and differentiated papillary cells in middle of May, ended up with CDif again, this time treated at home. Decided to get the TT end of June primarily because of the Hashimoto's and the fact that Hurthle Cell could spread through blood vessels, and I didn't want to go through surgery twice. Got CDif again! Lab results of thyroid showed Hurthle (Oncocytic) Cell Carcinoma. Thank goodness I got it all out. By summer 2024, a hiatal hernia that was small to medium sized, had grown to extremely large (felt like overnight) and I had to get fundoplication surgery and hiatal hernia repair in late August 2024. Now, here I am 22 months since TT and unfortunately, I feel awful. Not sure what is going on but tons of pain, auto immune issues, my arthritis is way worse than it has ever been and is progressing fast, I have a lot of stiffness, sometimes numbness and tingling in my extremities, digestive issues, exhaustion, (difficulty sleeping), low iron, headaches, dizziness, the list goes on. I just went through two rounds of antibiotics for an infection they believe was in my lymph nodes and causing crazy neck pain (not completely gone). I've been in and out of physical therapy, physical med doctor, received prednisone packs, cortisone shot, nothing seems to keep the pain from subsiding. Scans show my arthritis has progressed rapidly in my spine, etc. It has actually stopped me from exercising like I was (which I love and is unlike me -used to be a personal trainer). Seeing the functional medicine doc again this week. I'm sharing this because I don't know if CoVid and or the vaccine have created these things or progressed any disease I may have had pre-CoVid. Scary thought to say the least. But I do know my health issues have gotten way worse since having CoVid and the two vaccines. It also could just be my body and a timely coincidence. My poor husband doesn't know what to do with me. I have a high tolerance for pain and am pretty high energy, so I can push through every day. I work full time and still have two kids at home, one with learning challenges and a very busy schedule. Anyway, I hope this information maybe helps anyone who is also thinking they might be going through anything similar and is looking for a solution. And if you have any info or recommendations that could help, please share!!!! The more we know, the better we can figure out a plan moving forward. Thanks for reading 🙂 Wishing everyone better health and good results from their various treatments.