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DiscussionHow do you get the best treatment? Please share.
MAC & Bronchiectasis | Last Active: Mar 8 4:47pm | Replies (8)Comment receiving replies
Replies to "How did you do it? Did you have a list of questions? Do you live in..."
I didn't get a list of doctor's names, just a list of their specialties and how they could contribute to my well being. Because of that list, I searched and found that my insurance offers a case manager to coordinate the care from all my different providers. I also found types of specialists that my pulmonologist hadn't offered me. Additionally, it gave me suggestions of testing, drugs, and exercises that they might offer me. For instance it suggested I get a pulmonary fitness test every 6 months and potentially sooner if I'm having exacerbations to monitor if my bronchiectasis is getting worse. If so, we can take more aggressive steps to stop additional damage.
I have a subscription to ChatGPT, but you could try other models. This was my prompt using the DeepResearch setting,
"Pretend I'm the US President. I have bronchiectasis as a result of having had a B cell Non-Hotchskins Marginal Zone Lymphoma tumor that was treated with Bendamustine and Rituximab. I've had repeated exacerbations of the bronchiectasis area. What grouping of experts would you assemble to give me the best outcome possible? "
You can try it by swapping your health situation for mine. Probably more detail will get you better results.