Hi
Am an 80 yr old female with descending 5.9 mm AAA with a curved aorta caused by scoliosis. Still undetermined regarding AAA repair as two custom surgeries are required for repair. Length of quality life after surgery is unknown. Am being monitored by Mayo Clinic vascular surgeons.
An endovascular procedure can’t be performed as my left kidney is too close to the aorta/ aneurysm because of the curvature. The first lengthy surgery would be open abdominal requiring three vascular surgeons. The aorta would need debranching (4 each). Custom mesh tubing would be used. The aorta would be clamped to stop blood flow and only a short time period is given or left kidney could be damaged. Rehab would be needed and recovery about 4 months, if no complications. The second surgery is less invasive, but requires custom stents to bypass aneurysm. Both surgeries will be extremely painful with a lengthy recuperation. One could be exposed to viruses and infections during a required rehab stay.
My immune system has lowered since having Covid twice. Health issues with two autoimmune diseases prevail. Blood pressure remains stable and am being monitored by my internal medicine physician, holistic MD, and
dietitian to try and keep aneurysm from rupturing as long as possible. My Mom had two large aneurysms that never ruptured and died of cancer at
83 yrs.
Fortunately, am still independent, live alone, and not ain a nursing home. No symptoms. It takes a wonderful group of family, friends, and healthcare team for support. Every new day waking is a joy.
Blessings to all who are experiencing aneurysms and having to make difficult decisions.
It is upsetting that there are no support groups for individuals who do not want AAA surgery in my area.
Many unanswered questions for me:
How does one know when a rupture is occurring
How painful is it
How to reduce pain and be as comfortable as possible
What happens to the body during a rupture
Does one become unconscious immediately
How long does it take to die during a rupture if “Do not
resuscitate” is in effect
Is there a DNR form that pertains only for an aneurysm
rupture.