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@egayle187

Thank you shonny@shonny. Having a team of specialists coordinating your care is wonderful. However, most of us are limited in to whom we have access. I have a few practical suggestions to add:
1. Create a list of your diagnoses and medications prescribed and by whom. Give to all providers.
2. Create a one page history of your health problems. Give to all providers.
3. If you are lucky enough to have a mychart type online system, Take full advantage of it to contact providers with info prior to visits.
4. If your providers are individuals and not connected to a system, connect them yourself. Take your latest information from one provider to another.
5. If you have a provider who attributes your problems to getting older or being non-complient, change doctors Get a referral to a respiratory therapist and/or rheumatologist. The newest blood tests are fantastic at pinpointing what contributes to your problems. My asthma turned out to be caused by Lupus.

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Replies to "Thank you shonny@shonny. Having a team of specialists coordinating your care is wonderful. However, most of..."

Egayle this is really good advice. This is what I have been doing for the last two years. My doctors are ok individually but there is almost no communication unless it’s something super urgent.

Thanks! This is helpful. I especially like the one page history, because it's hard to remember who I told what to and to remember everything I need to share when I meet with someone.

Regarding having a team of experts. It's often not that we don't have access to these people, but more that no one thought to offer them to us. I've got basic insurance, but I did some research I found practitioners that were covered. I just needed to raise my hand and ask for it.