← Return to PMR and pain levels

Discussion

PMR and pain levels

Polymyalgia Rheumatica (PMR) | Last Active: 6 hours ago | Replies (24)

Comment receiving replies
@debbiebas216

Thank you John. You are a wonderful source of information and good advice. I have been reading other posts re tapering.
The 1 mg every 2 weeks is coming from my rheumatologist. She originally had me taper 2.5 every 2 weeks which did not bring good results. Several posts I’ve looked at they seem to taper once a month and even .5 taper. She’s anxious to get me off prednisone and on leflunomide but I am refusing that option. The side effects are troubling leaving me open to infection and cancer, I’d rather live with the morning pain. I will talk to her at my next appointment re my tapering schedule. She has ideas trying to get me pain free but in the end will give me other options.
I also have a small adenoma on one of my adrenal glands and wonder if that’s doing anything but the soonest I can get an appointment to an endocrinologist is May.

Jump to this post


Replies to "Thank you John. You are a wonderful source of information and good advice. I have been..."

Hi @debbiebas216, I totally understand your desire to get off of Prednisone as quickly as possible. It does an incredible job at treating PMR but can leave a trail of nasty side effects. Unfortunately, if your body is not “finished with PMR”, the consequences of a fast taper could be very unpleasant and linger. It sounds like your current pain has thankfully been tolerable. A slow taper is what most medical professionals recommend so that your body can begin producing its own cortisol at sufficient levels. I know that there are medical professionals in our group who can explain the science so hopefully they will chime in. I just wanted to give you this caution. Good luck and I pray we are all pain free in the near future! ❤️