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Oral Lichen Planus

Autoimmune Diseases | Last Active: Apr 4 8:21am | Replies (48)

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@rashida

@lizralpol it is an autoimmune condition which, like all other autoimmune conditions, cannot be cured but can be kept under (reasonable) control.

It took several years, and visits to several doctors - dentists, periodontists, maxillofacial surgeon, oral surgeon, dermatologist, back and forth to more of these until finally I was referred to an oral pathologist. He tried some treatments that didn’t work (Prednisone Oral rinse, Oracort, something else I can’t remember that was bubblegum pink and tasted vile to me, etc.). He finally prescribed Lyderm Gel 0.05% and bingo! It worked - albeit it took about ten days because my mouth was in such bad condition by then.

Lyderm Gel is a topical but can be used off label as in my case and it should not be used long term. Seven days is the recommended time period but I went beyond because my mouth took that long to heal. Now I just apply the gel on the sore areas in my mouth with a Qtip whenever I have a flare which usually is not as bad as I started out with.

If you get your doctor to prescribe Lyderm, make sure it is the gel form and not the cream.

I find also, that my gums and inner cheeks flare up any time I eat mushrooms used in any way, shape or form so I have to avoid them like the plague - and I love mushrooms!

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Replies to "@lizralpol it is an autoimmune condition which, like all other autoimmune conditions, cannot be cured but..."

Hi
I live in regional area in Australia and we dont have dentists who stay in area long. Usually newly trained straight out of uni. I was told consistently that I was over brushing, until a reasonable dentist referred me to Melbourne Oral Medical Centre who took one look and said yep thats it, but did a biopsy to confirm. I am grateful I have been caught well. She has me on a special toothpaste Curasept with 0.12% chlorhexidine and the gel to use only on biopsy site currently. The lichen is changing but not gone but early days I suppose. This all came about because I had a white spot on my tongue that came back as squamous papilloma which was removed and declared benign. I was so worried I had cancer