Another update. Dr. Winthrop recently confirmed with me, though this was a double blind study and any data in the study will never be directly connected to me, that he is convinced I had Chlofazamine and not the placebo, and he believes either I no longer have MAC, and if I do it is confined to a very small area, which looks clear (thanks to airway clearance). He also said the study is over and will be published this summer, and I could be wrong, but the way he was putting those things together led me to believe that he doesn't think, mine is the only successful case. I am eager to see the published results and so grateful to have been able to participate, and be one of the lucky ones to get the real drug. I am now "on surveillance," the only real change is that I am now nebbing just once a day instead of twice, but keeping my morning session, brisk walk, and other AC as needed. I'll also continue to be caution about exposure to MAC and respiratory illnesses.
Anna