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@jukebox42

Your outcomes are so fantastic! Bless your heart, you have so much courage. If you don't mind, can I ask your age? I'm 83 and not sure my body will handle the side effects of treatments currently recommended. Again, my lung net is fairly stable right now with main side effect of flushing that occurs infrequently. The last time I had--for the first time--whole-body flushing that lasted about a half hour was the day after seeing my oncologist. Then again 2 days later. No total body flushing since then: 2 months ago. Definitely kicks in with stress, which is currently being worked on with exercise, counseling, music and CBD gummies/oil!! I'm happiest when I'm ignoring that I have Typical lung NET. My dad and oldest brother both died from pancreatic cancer, ages 71 and 66 respectively. I had bi-lateral breast removal and simultaneous reconstruction (with complications) for a tiny, Stage 0 left breast carcinoma in 2011 at age 69. I was given no choice but to remove the entire left breast. Since I had a history of benign cyst removals from both breasts, I opted -- after much teeth gnashing -- for removal of both. The biopsy doctor told me I would not need chemo or radiation, and I stuck with her words even when specialists tried to push them on me after the first major surgery. I'm a professional writer in the process of finishing a 2nd in a crime series novel with other projects done that need polishing before I try to find an agent for them. I already know that when my body has to heal from something, my mind is too tired and too drug-addled for writing. So unless they come up with something pretty quickly that doesn't screw up your system while you're killing cancer, my decision not to do treatments may already be made. I'm not a quitter. I'm drinking the teas and taking supplements and eating the right foods (which list is in flux, i.e. 1st it's eat raw veggies, then it's cook all your veggies). I'm a stubborn fighter on my own terms as long as that is possible. People like you are outstandingly brave. I'm so happy for you that your treatments have paid off.

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Replies to "Your outcomes are so fantastic! Bless your heart, you have so much courage. If you don't..."

@jutebox42: I am just like you trying to lead a positive life even with a terminal cancer. I turn 80 in May ‘25. Treatment decisions are very difficult. I think if we have quality scans 3-4 times a year we can be assured that our tumors are not progressing out of control. If we are comfortable with 28day Lanreotide shot or no shot if it interferes with our preferred life style - it is our choice. However if a scan reveals tumor progression I believe you are best served by NET specialist at a cancer center for best treatment advice and your choice of treatment facility. This approach has served well for me.
I wish you great fun in your writing career. It is a positive mental distraction from being only an oncology patient. I think You can do this YOUR way… but be villigant with scans. Be well! Be happy!