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The waiting is terrible

Prostate Cancer | Last Active: 1 day ago | Replies (44)

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@beaquilter

What were your side effects of it?
My husband is afraid of the hot flashes and mood swings and all the other stuff that can happen.... I told him- HA welcome to a woman's world in mid 40s.....
And that I'd rather have a husband and no sex life, than a dead husband (and still no sex life)
I'm surprised that UNC didn't jump all over us and started something right away for him, instead we have to wait 10 days from the PET scan.
We just want answers if there's hope or not, so far google and forums like this are pretty dire and I haven't come across anything that's as bad as his.
Yet the symptoms are minimal!

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Replies to "What were your side effects of it? My husband is afraid of the hot flashes and..."

There are side effects, mainly fatigue, but if you exercise daily it helps you feel better. The hot flashes are not that bad as they are short in duration.
I actually started ADT right after my biopsy results, as my Gleason score was 4+5. I then had the PSMA Scan about 2 weeks later. For stage 4, ADT is the first step in treatment. The side effects of ADT are nothing compared to what the cancer growths will do to your organs and bones. If I had not had my annual PSA test, I most likely would have died from kidney failure with out any treatment. My only symptoms were more frequent urination at night and some strange pains in my upper legs off and on.

someone might have already suggested this, however, I recommend to also use perplexity.ai. it costs $20 a month to use pro version. it is helpful by providing links to research papers (pud med articles) among other stuff. you can also copy paste test results and ask it to explain in lay man's terms. i found it very helpful.