Connect
← Return to The waiting is terrible: Husband has Stage 4 prostate cancer
Discussion
The waiting is terrible: Husband has Stage 4 prostate cancer
Prostate Cancer | Last Active: Apr 27 4:48pm | Replies (55)Comment receiving replies
We're going to see a urology something oncologist at UNC on the 17th... He came highly recommended.
I'm tempted to try DUKE or Mayo here, but want to at least talk to ONE person first!
We really feel like it's so wide spread, I don't know if they'll even have an answer or just deal with symptoms.....
Replies to "We're going to see a urology something oncologist at UNC on the 17th... He came highly..."
beaquilter, gather your husband's reports and send them to 'Duke and Mayo with your consultation request. If you are completely satisfied with the (probably medical) oncologist you'll see on the 17th, you can cancel the other requests.
You might start looking at checkpoint inhibitors. https://www.mdanderson.org/cancerwise/what-s-new-in-immunotherapy-for-prostate-cancer-treatment.h00-159697545.html
Call the place that performed the biopsy and ask that they order a Decipher Test. The genetics of the tumor itself may give a better idea of which medications would be the most successful.
His care will be better with you on the front line.
I don't think you should wait to request other consultations, because you'll end up waiting anyway.
Between now and the 17th call for cancellations.
Bless your struggle with luck!
My husband was diagnosed with stage 4b prostate cancer last November. He is undergoing a triple protocol treatment comprising ADT, abiraterone, and docetaxel chemo. His doctor told us that his cancer is treatable but not curable.
He just had his 4th chemo infusion and is struggling with side effects, such as nausea, constipation, mpsore mouth, and fatigue. It really hurts to see him struggle. But his doctor tells me that he can provide the medical care but my husband desperately needs support from his family.
You need to see an oncologist for advanced cancer, and not just a urologist. Definitely make sure you go directly to the right type of doc so you don’t waste time. With his widespread tumors, I think they might recommend aggressive systemic treatment of chemo.
Pluvicto works best for tumors in bones, but not as well for soft tissue tumors. Possibly ADT immediately, then chemo asap, then down the road, Pluvicto for remaining tumors. My husband is at the end of 6 years of numerous types of treatments.
Connect
If Pluvicto works and reduces your metastasis all over your body it should also reduce the symptoms you’ve been having.
The same thing would be true of triplet therapy with ADT, a second drug and chemotherapy.
It doesn’t matter how highly recommended a urologist is, you want to see an oncologist preferably a Genito Urinary oncologist. Mayo would be a great place for a second opinion. You might be able to get an appointment sooner than your currently scheduled appointment.
Urologists Are good at finding prostate cancer and doing surgery on prostate cancer.. They are not experts on advanced treatment that you need. That’s why you need to find yourself a G U oncologist. Mayo has them. Triplet therapy, Pluvicto and Chemotherapy are not part of a urologists bag of tricks. They can’t keep up with the latest that is going on in prostate cancer like a GU Oncologist can.