I had genetic testing this year. Both a sibling and I found we had neuroendocrine tumors in the small intestine. Since we have another sibling, with a child, we are having the testing. So far I found that I do have an inherited mutation. Now both of my siblings are being tested.
I was told that a positive test could affect future life insurance coverage, not medical insurance. I'm retired so that is not an issue for me at this stage of my life. I realize that I already have a cancer diagnosis, that is already a label on me. But there are different factors for each of us to consider. There are many changes in the current white house that I don't know what the future will hold.
I wish you the best and hope you find the support that you deserve.