← Return to Diagnosed /w Ameloblastoma. Young Adult
DiscussionDiagnosed /w Ameloblastoma. Young Adult
Head & Neck Cancer | Last Active: Mar 18 11:49am | Replies (22)Comment receiving replies
Replies to "Hi. Does Mayo treat children for Ameloblastoma? My 8 y/o old son likely has ameloblastoma (pending..."
As most here are aware, I chose conservative treatment the first time back in 2007 and have been satisfied with the outcome. I'm now on targeted chemotherapy, which has been slowly shrinking the recurrence. I suggest reading both this thread and the other ameloblastoma thread to get more details, then please ask questions!
Be prepared for it to take a long time to get a diagnosis from the biopsy after the original pathologist refers it to a specialty pathologist.
One caution: While doing your research on ameloblastoma and finding a top tier facility/doctors for treatment - I would not make any solid plans until you have a confirmed diagnosis from the biopsy. It is typically a very slow growing cancer and I am a proponent of evaluating all the options.
Hi @momofj, here is more information about requesting a second opinion from Mayo Clinic for your son. http://mayocl.in/1mtmR63
- Ameloblastoma care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/ameloblastoma/care-at-mayo-clinic/mac-20351281
Mayo Clinic Children's Center and pediatric specialized care is located at the Minnesota campus https://www.mayoclinic.org/departments-centers/childrens-center
Did the biopsy results confirm your son's diagnosis of ameloblastoma?
Rare? Unicorn rare! But I would bet dollars to doughnuts that Mayo Rochester or Phoenix would handle this. You could call and specifically ask for the oral and maxillofacial surgery desk. Rochester has a level 1 children’s surgery center with five surgeons on staff who work closely with the specialist surgeons of all specific departments.
I am personally well aquatinted with adult and teenage Ameloblastoma patients through Rochester and their surgeons.
Your son will love Rochester in the summer time, the farms, rolling hills, and herds of wild unicorns.