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Mestinon for Long Covid

Post-COVID Recovery & COVID-19 | Last Active: 1 day ago | Replies (30)

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@j77

Thank you so much for all of the wonderful advice! It is so scary to go through something like this. It is difficult when conventional testing can't pick up issues being caused by Long Covid too. I have never heard of the Radiance Diagnostics Test before. I am definitely going to bring that up with my Primary and the next Infectious Disease Doctor I meet with. I tested negative for Lymes, but I know there is a more accurate test for Lymes than the ones the hospital usually uses. Epstein Barr was definitely reactivated in me. I asked an ER Doctor to check for it at the beginning of this and she rolled her eyes, but sure enough the Epstein Barr titters were sky high. The same thing happened years ago before I was diagnosed with Thyroid Disease. Epstein Barr brings so much trouble. I definitely need to try Mestinon and I have heard of Paxlovid helping as well. I think I saw some posts on here where people were mentioning that Paxlovid was reversing some life long Autoimmune issues. I have major gut issues. I am sure I have MCAS. I was diagnosed with sibo, but I cant take antibiotics or even natural antibiotics. My nervous system goes crazy when I take antibiotics. I guess that could be from covid. I feel poisoned everytime I eat. I cut out all gluten and dairy and am just trying to stay on the Mediterranean diet. It makes me nervous because of all this I have fatty liver now, high blood pressure and insulin resistance. I am scared I will end up with permanent liver issues or become diabetic. The first year I was a walking skeleton, but now my belly is so big. I know that is awful because it is putting so much pressure on all of my organs. I also have the muscle twitching all over and dry squinty blurry vision with permanent floaters. I also am a walking zombie. My personality has completely dissapeared. I was on another site and apparently that is another common symptom of covid. I feel like my face and eyes are like a parkinson's mask like face. It is very weird. I will check out Dr. Bruce Patterson. I was also looking at the Polyvagal Theory. I have been trying the Ice Baths, spending time in nature, grounding mats, etc. Long Covid is so complex. It reminds me alot of Autoimmune, but a thousand times worse. Thank you again for taking the time to respond. It sounds like you are on your way to recovery and I will be praying for you.

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Replies to "Thank you so much for all of the wonderful advice! It is so scary to go..."

It is scary going through all of this. I too have NAFL , and other metabolic issues with high glucose, high TSH, and other high pituitary gland hormones.

However ALL of these have returned to normal over time. I’m still unsure of my NAFL though, but ACH and gut can impair this and mine is mild.

Have you tried antivirals? Valganocyclovir is supposed to help clear EBV. And there are other antivirals as well to try. Reactivated EBV needs to be treated. Are your doctors addressing this for you? Both EBV and Lymes n ed to be cleared prior to taking the Maraviroc/Atorvastatin LC treatment protocol

A great resource I’ve found but then double check accuracy and with my doctor is ChatGPT.

Does your body react to Rifaximin? It’s not systemically absorbed and is gut specific

I hope you find some treatments to help you move the needle for you. Have faith and know that it will not be this bad forever.

Prayers of healing and finding answers! ❤️‍🩹