@j77. You will probably have luck if you call one of these:
NORD. National Organization of Rare Diseases. https://rarediseases.org/

GARD Genetic and Rare Diseases. https://rarediseases.info.nih.gov/
Both organizations maintain a list of doctors who specialize in autoimmune disease. You may have to drive somewhere, but. . . . . .
Good Luck!!