← Return to Have any of you been diagnosed with having Caspr2 antibiodies?

Discussion

Have any of you been diagnosed with having Caspr2 antibiodies?

Autoimmune Diseases | Last Active: Mar 6 9:18pm | Replies (3)
Comment receiving replies
@gently

https://my.clevelandclinic.org/staff/28896-justin-abbatemarco
I don't think PT is sufficient.
It feels odd when Mayo decides against seeing you as a patient. But it's probably a shortage of specialists or your insurance carrier.
It's very stressful. But there are good treatments and you are a step ahead by getting it diagnosed.
Check out abbatemarco at Cleveland Clinic.
Bless your struggle with luck

Jump to this post

Replies to "https://my.clevelandclinic.org/staff/28896-justin-abbatemarco I don't think PT is sufficient. It feels odd when Mayo decides against seeing you..."
diane694 | @diane694 | Mar 6 9:18pm

Pretty sure it’s not insurance. I know it is rare, so not many people have this and I believed the Dr that first identified it is at Mayo. I’m very frustrated.

VIEW AND REPLY