ProAct vs. AUS

Posted by jimchs @jimchs, Mar 2 11:14am

In 2015 at 55 I had an RP with radiation. Never leaked. 2019 developed a stricture and urologist tried to balloon with cath but, it came back. He advised stricture surgery and, May 2024 had it done. Up until then I had no leakage. Since day of surgery I have 100% leakage. Dr. who did surgery wants to try ProAct which he does exclusively but, second doctor opinion said AUS which, he does exclusively. Since I am a beginning weightlifter I was wondering which can hold back the urine better. I also can find no information on how many surgeries of either any doctor has performed. I would like to find a doctor who has done many of one or, the other. HealthGrade and ZocDoc seem to be no help.

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@jimchs

I conferred with a doctor from Arizona who said ProAct is helpful but, AUS gives better results and referred me to a doctor in NY who is the same one who repaired my stricture that came back and, wants to do the PA. I will ask him about the radiation. At this point I don't know what to do. Not really on board having to push a button to urinate.

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You know the old advertisement come on? “It’s so simple - you just push the button!!”
Maybe think of it like that?

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@jimchs

I conferred with a doctor from Arizona who said ProAct is helpful but, AUS gives better results and referred me to a doctor in NY who is the same one who repaired my stricture that came back and, wants to do the PA. I will ask him about the radiation. At this point I don't know what to do. Not really on board having to push a button to urinate.

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I am.
Built-in push button sounds cool.
It's the first step towards my goal of being Robocop/Darth Vader.

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@heavyphil

You know the old advertisement come on? “It’s so simple - you just push the button!!”
Maybe think of it like that?

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I think I'm just in denial. I have to do something, be it AUS or ProAct. Can't deal with 100% incontinence forever.

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@garyretiredstatecop

I had the ProACT implant back in September 2023 and no problems or leakage now. It is minimally invasive surgery and it took my urologist about 20 minutes. If you had radiation my urologist would not implant it. In the search box type “Can Anyone Tell Me About Their Experience With ProACT (AUS).” I listed my complete experience there with ProACT.

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I am awaiting my doctor's answer to the radiation ProAct question. He did not mention it when he suggested PA. On the other hand it seems urethral erosion is also more likely with an AUS

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I've shamelessly stolen this from another forum, but here's Sling vs AUS:

AdVance Bulbar Sling

Following the installation of the sling in May 2011, there was a terrific improvement and to all intents and purposes, I was dry. This state lasted for about six to nine months, but then there was a steady decline in performance to the point where I was again using fairly heavy pads (=TENA level 2).

By the end of 2013, the level of incontinence could be lived with but was beginning to weigh on my mind quite heavily. Following an unsuccessful attempt to get the local NHS interested, I went back privately to the hospital that performed my LRP and the implant of the sling, asking for an AUS. During the build-up to the procedure, a stricture was found and resolved by an Optical Urethrotomy, an unfortunate side-effect of which was setting my level of incontinence back to the three-months after LRP level.

The operation to insert the artificial sphincter was carried out on 21st October 2015. The model used is an AMS 800 from Boston Scientific. The procedure involved two cuts, one low down in the abdomen to take a small reservoir and one between the scrotum and anus to install a cuff and the operating pump. For details of the AMS 800, see:

DESCRIPTION OF AMS 800

I spent two nights in hospital, again with a catheter. I had relatively little pain, but a lot of bruising and swelling to the scrotum, much more than resulted from the LRP and sling implant operations. There was the usual abdominal post-operative problem of wind, and it has taken several more days than before for it to subside. Also post-operative constipation set in, but was resolved (somewhat painfully) about four days after the operation. The trip home was quite comfortable, particularly as the westbound carriageway of the M54 is now smooth tarmac instead of broken concrete.

I was on heavy antibiotics from three days before the operation to three days afterwards, and had to shower with an anti-bacterial wash for two days before the operation to minimise the risk of infection. Changing the waterproof plaster on the abdominal cut is easy, but the one underneath is quite difficult to get at, replacement requiring a compliant and skilled spouse and adopting a position that ladies in childbirth will understand.

Currently the AUS is locked off (fully open). I have a follow-up appointment on 4th November to check healing and that all the bits are still in the right place. Activation is planned for 2nd December.

The AMS 800 comes with a warranty (just like a washing machine) and a set of instructions for operating, activating and locking off the device. Also included is a dummy operating pump to practice with. One restriction to be adhered to is that if, for any reason I need to be catheterised in the future, the cuff must be locked open to avoid damage to the AMS 800 or at the worst, puncturing my urethra, so I need to carry the instructions with me. Normally this is not a problem but I am wondering how to communicate the presence of the device if I am unconscious at the time.... maybe a visit to a tattoo parlour?

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@peterj116

I've shamelessly stolen this from another forum, but here's Sling vs AUS:

AdVance Bulbar Sling

Following the installation of the sling in May 2011, there was a terrific improvement and to all intents and purposes, I was dry. This state lasted for about six to nine months, but then there was a steady decline in performance to the point where I was again using fairly heavy pads (=TENA level 2).

By the end of 2013, the level of incontinence could be lived with but was beginning to weigh on my mind quite heavily. Following an unsuccessful attempt to get the local NHS interested, I went back privately to the hospital that performed my LRP and the implant of the sling, asking for an AUS. During the build-up to the procedure, a stricture was found and resolved by an Optical Urethrotomy, an unfortunate side-effect of which was setting my level of incontinence back to the three-months after LRP level.

The operation to insert the artificial sphincter was carried out on 21st October 2015. The model used is an AMS 800 from Boston Scientific. The procedure involved two cuts, one low down in the abdomen to take a small reservoir and one between the scrotum and anus to install a cuff and the operating pump. For details of the AMS 800, see:

DESCRIPTION OF AMS 800

I spent two nights in hospital, again with a catheter. I had relatively little pain, but a lot of bruising and swelling to the scrotum, much more than resulted from the LRP and sling implant operations. There was the usual abdominal post-operative problem of wind, and it has taken several more days than before for it to subside. Also post-operative constipation set in, but was resolved (somewhat painfully) about four days after the operation. The trip home was quite comfortable, particularly as the westbound carriageway of the M54 is now smooth tarmac instead of broken concrete.

I was on heavy antibiotics from three days before the operation to three days afterwards, and had to shower with an anti-bacterial wash for two days before the operation to minimise the risk of infection. Changing the waterproof plaster on the abdominal cut is easy, but the one underneath is quite difficult to get at, replacement requiring a compliant and skilled spouse and adopting a position that ladies in childbirth will understand.

Currently the AUS is locked off (fully open). I have a follow-up appointment on 4th November to check healing and that all the bits are still in the right place. Activation is planned for 2nd December.

The AMS 800 comes with a warranty (just like a washing machine) and a set of instructions for operating, activating and locking off the device. Also included is a dummy operating pump to practice with. One restriction to be adhered to is that if, for any reason I need to be catheterised in the future, the cuff must be locked open to avoid damage to the AMS 800 or at the worst, puncturing my urethra, so I need to carry the instructions with me. Normally this is not a problem but I am wondering how to communicate the presence of the device if I am unconscious at the time.... maybe a visit to a tattoo parlour?

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Would be nice to know how well it worked!?

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@jeffmarc

Would be nice to know how well it worked!?

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Here's the rest:

Recovery has been a little slower than I expected. A fair amount of the swelling went down on Saturday and Sunday and at last I was able to feel the pump unit. My consultant asked me to feel around the pump to get familiar with it. However, it is still surrounded by some sort of stuff so at this point it is not possible to work out which way round it is. The other issue (to be sorted out with the consultant) is that when the scrotum contracts (e.g. when cold) the pump disappears up inside a body cavity. I am a bit reluctant to try to push it back down because I don't want to damage it and because the area round it is still very tender.

The underneath plaster fell off again on Friday. I had to use a small mirror to look because I don't bend that far. The wound was fully healed so I left it open to the air, and it's much easier to keep clean that way.

The swelling has gone down markedly now and it is possible to make out the shape of the pump unit. However, the pump is very slippery and skips about all over the place; using it may take some practice. The soreness has not gone away, particularly from the area of the cuff, and is being aggravated by the rubbing of damp pads. Time to try Vaseline I think.

I have a medical alert bracelet (nothing exotic, just stretchy and bright red). It was quite a challenge to get the message onto the bracelet in two lines of 45-characters (including spaces). "Do not catheterise without..." takes up a lot of space to start with. The kit that accompanied the AUS included a small plastic tag with deactivation instructions that can be attached to a key ring.

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Some observations so far (four days on from activation).

There is a technique for operating the pump. It is very slippery, so one-handed operation is a bit hit and miss (mostly miss), so the other hand has to be used to grasp the pipes above the pump to stabilise it, then the lower section of the pump can be squeezed to release the cuff. I'll keep an eye on this to see if one-handed operation is feasible with experience; if not, then using a urinal in gents' toilets seems to be out unless there is one with particular privacy.

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@peterj116

Some observations so far (four days on from activation).

There is a technique for operating the pump. It is very slippery, so one-handed operation is a bit hit and miss (mostly miss), so the other hand has to be used to grasp the pipes above the pump to stabilise it, then the lower section of the pump can be squeezed to release the cuff. I'll keep an eye on this to see if one-handed operation is feasible with experience; if not, then using a urinal in gents' toilets seems to be out unless there is one with particular privacy.

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I'm just over 3 weeks from the surgery and the swelling in the scrotum has gone down enough so that my penis no longer goes full turtle due to the swelling although when I pull down my Depends I initially still look uncircumcised.

Peterj116 mentioned "The other issue (to be sorted out with the consultant) is that when the scrotum contracts (e.g. when cold) the pump disappears up inside a body cavity." I'm more than 2 weeks still from activation but I have the same issue in terms of normally not being able to feel the two tubes at the top of the device at the top of the scrotum. I think my scrotum is normally relatively contracted even when not particularly cold. I also understood from the doctor that with one hand one is supposed to grasp the two tubes at the top and operate the pump button with the other hand. I'm hoping that will have resolved in just under 3 weeks when the doctor activates the device and shows me how to work it.

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@bwjb

I'm just over 3 weeks from the surgery and the swelling in the scrotum has gone down enough so that my penis no longer goes full turtle due to the swelling although when I pull down my Depends I initially still look uncircumcised.

Peterj116 mentioned "The other issue (to be sorted out with the consultant) is that when the scrotum contracts (e.g. when cold) the pump disappears up inside a body cavity." I'm more than 2 weeks still from activation but I have the same issue in terms of normally not being able to feel the two tubes at the top of the device at the top of the scrotum. I think my scrotum is normally relatively contracted even when not particularly cold. I also understood from the doctor that with one hand one is supposed to grasp the two tubes at the top and operate the pump button with the other hand. I'm hoping that will have resolved in just under 3 weeks when the doctor activates the device and shows me how to work it.

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Good Luck

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