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CellCept and Promecta for treatment of chronic ITP?

Autoimmune Diseases | Last Active: Mar 6 1:36pm | Replies (4)
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@alohadesign

I was diagnosed in November 2024. I am on a regimen of prednisone. For the first time, I am in normal range 3 weeks in a row. Started out 80 mg/day for 2 weeks (this is all based on body weight so your numbers may be different. Then 70 mg/day for 3 weeks, then 60mg/day for 3 weeks. I will find out tomorrow (March 7) if it is still working. Then a 10 mg/day step down every 3 weeks. I am also interested in other treatments as I hate the side effects of steroids!!

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thisfatoldlady | @thisfatoldlady | Mar 6 1:36pm

The prednisone side effects did me in. There was no way I could tolerate it long term, plus it didn't work all that well for me. Took a long time before I got any bump in my numbers and then they started going back down immediately. Promacta is a little easier with the side effects, but it is horrifically expensive (something I didn't realize until yesterday when I was checking to see why my co-pay was so high).

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