Non-Length Dependent Small Fiber Neuropathy

Hi Alan, I don't think it can be cured but do believe it may be possible to slow or stop the progression. I don't have the burning or pain but deal mostly with the numbness and some tingling. I share what helps me in my neuropathy journey story along with other members in another discussion - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

If you haven't already seen the tips and suggestions on the Foundation for Peripheral Neuropathy it does have some helpful information - https://www.foundationforpn.org/living-well/. You might also find it helpful to scan through other related discussions listed here - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.

Have you looked into any complementary or alternative therapies for neuropathy?

@alan123123
Unfortunately it is doubtful your neuropathy will improve or be reversed over time. However, certain medications may be helpful.
My neuropathy continued to worsen over time. It's now at level 4 but my symptoms have improved. I no longer have the burning, stinging, tingling, shooting, stabbing or aching pains that I did in the beginning. Now I only have numbness. My neuropathy is believed to have been caused by lo v term multiple seizure medications.
Take care,
Jake

I'd like to share what I've learned from my doctor who is an infectious disease doctor for Lyme disease. He has over 800 patients with 80 per cent neurological issues out of that 80 per cent twenty per cent have small fiber neuropathy If you Google Lyme disease and neuropathy you'll see how they're linked I hope this can give you some answers on the root cause.

Thank you for your advice guys and thank you for the links John they were very helpful . I’m very glad I found this site I’ve felt very alone this past year . They couldn’t find what caused my neuropathy but there must be a reason for it “right” they just couldn’t find it in there tests. Looking back before my acute onset I had signs of neuropathy but I didn’t pick on them. I was a binge drinker since a very young age , I’m 53 now and drank a lot less but still binged drunk every now and then. I haven’t had alcohol since I had my acute onset and the last few months my neuropathy has improved but recently it’s flared up again. Is it possible my neuropathy was caused by alcohol toxicity over the years but wasn’t picked up on .

I have non length dependent sfn my left side of my face has tingling and my neck is very sensitive fells like bad sun burn . My hands tingle and burn .my feet burn on and off and my legs are sensitive to touch. Some days are worse than others . I’m trying to figure out what makes them flare up. Can I ask the question what makes your small fibre neuropathy worse and maybe I can get some pointers on trying to manage my symptoms
Thank you
Alan

Wow— our stories and the onset and everything are almost identical. Same exact thing happened to me. How are you doing now? How has it progressed or has it plateaued?

I am 30 and we have a similar situation, how are you doing now?

It has plateaued but I still have left face pain, burning mouth and left hand/arm burning and stinging (occasionally right hand/arm, too). Pain score of 2-4 out of 10 pretty much every day. Keeping my fingers crossed it doesn’t get worse. It has been almost five years since the onset. I now have episodes where I get sweaty all of sudden but at least it is not painful. The buzzing is almost gone. I never know where and when I will get the symptoms. I hope you are feeling better. Good news is I have not gotten worse. Stay positive!

How are you doing now?

Hi- any updates?