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BCR Prostate cancer. Need Opinions
Prostate Cancer | Last Active: 2 days ago | Replies (35)Comment receiving replies
It's definitely not "cut and dry!"
My experience with salvage was pretty good. I had 39 treatments very little side effects with the exception of fatigue, but, I was on Orgovyx at the same time, the side effects could've been caused by either/both. I found the best thing to counter this was forced activity, gym, walks, runs and a nap in the early afternoon.
The ADT meds (Orgovyx in my case) did cause me a lot of hot flashes, a little weight gain and some joint pain. That is temporary luckily, all the side effects of that have subsided after having stopped taking it six (ish) mos ago.
Everyone is different, but, in your place, I think I'd do it.
Replies to "It's definitely not "cut and dry!" My experience with salvage was pretty good. I had 39..."
I’m going with web265. I had 25 salvage tx and 6 months Orgovyx. Just finished everything about 6 weeks ago. Feel great - fatigue less every day - SE’s wear off quickly with Orgovyx,
Also agree with jeffmarc that I would do the radiation and ADT now while it is still in the prostate bed and pelvic lymph nodes, hopefully. Be sure your radiologist is going to radiate those pelvic nodes since any salvage radiation treatments usually fail for failing to treat the pelvic node area.
If you wait for your PSA to get much higher and it gets out of the localized bed and node area, it could spread to areas that are completely unknown, and there will be no way to have salvage radiation. At that point if metastasis flare up you’ll only be able to play whack-a-mole with SBRT and that’s certainly no fun.
Hope my side effects go away in 6 months. I m on ADT til April depending on PSA then. The nap, hot flashes, joint pain, weight gain are exactly what I have to deal with daily. GOOD ADVISE for everybody.
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Thank you! I appreciate your feedback. Man what a trip!