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Neuropathy | Last Active: 3 days ago | Replies (52)
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Hi! I have small fiber neuropathy in my entire body and while is it a huge pain (literally and figuratively), pharmaceuticals and holistic treatment can make a huge difference. While I am disabled, I am able to make a living, some things just take problem-solving. I don’t know if/how your condition may or may not progress, but hopefully I can provide some reassurance that even if it did progress, it doesn’t necessarily mean you’d have to live in a nursing home. 🙂 yoga, meditation, mental distraction, social connection, and nervous system regulation helps a ton! Learn your triggers and what calms your nervous system and they may help reduce pain levels
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Thank you for your hopeful response. I do not work. I am retired and
turning 77 in a couple of months. I am taking a break from washing the
kitchen floor with a Swiffer. So I do some of my own housework. My partner
of 30 yrs. David still works full time so I am at home most days. The
neurology visit that I mentioned was odd. She did some cursory reflex
testing and had all of my medical records to review. But honestly I got as
much info on this site as I did from her. She wrote 2 scripts. One for NCS
and EMG tests and one for physical therapy. But then she told me to make a
follow up appt. With her for 6 months. Really? How invested can she be in
my PN if I am not even seeing her again for 6 mos? Yes I get it that I have
to be my own advocate but what are tge tests for uf we arent going to meet
to review? Yes I am frustrated but not giving in. I will go to PT and
hopefully get some more insight from the therapist and of course here. 😀