Connect
← Return to Anyone have side effects after Lanreotide injection?
Discussion
Anyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (55)Comment receiving replies
@jutebox42 & @hopeful33250
You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in Endoscopy. Well differentiate, K 1%; Grade 1; Stage 4 (metastases to liver) primary Small intestine. Found Medical Oncologist in my small town and Started Somatuline Depot shots per month for 1 yr. Been on Lanreotide 120mg shot per 28 days ever since. April 2023 MRI showed progression of tumor growth. I went to City of Hope in Duarte, CA where NET specialist recommended treatments and further Gallium PET scan (not available near home). After much consideration I choose PRRT 4 infusion treatment offered there. From June thru December I received treatment with minimal side effects.
I am happy to report that my January 2025 MRI revealed significant tumor reduction, some tumors were no longer visable on scan, and few tumors remained stable. No further growth or metastases evident. I choose to receive MRI scans every 3 months to be vigilant regarding tumors.
I am regaining strength and happy and grateful for my treatment. I am receiving exceptional care and guidance from my NET Specialist at CoHope but continue to receive my Lanreotide treatment from my local Medical Oncologist.
I am open to answer any further questions that you have. I wish you best outcome on your cancer journey. Mayo Connect offers great support and an avenue to learn info on medications, treatments, health problems and side effects from Volunteers and fellow cancer patients. Never feeling alone in our situation is so helpful too!
Replies to "@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in..."
Connect
Your outcomes are so fantastic! Bless your heart, you have so much courage. If you don't mind, can I ask your age? I'm 83 and not sure my body will handle the side effects of treatments currently recommended. Again, my lung net is fairly stable right now with main side effect of flushing that occurs infrequently. The last time I had--for the first time--whole-body flushing that lasted about a half hour was the day after seeing my oncologist. Then again 2 days later. No total body flushing since then: 2 months ago. Definitely kicks in with stress, which is currently being worked on with exercise, counseling, music and CBD gummies/oil!! I'm happiest when I'm ignoring that I have Typical lung NET. My dad and oldest brother both died from pancreatic cancer, ages 71 and 66 respectively. I had bi-lateral breast removal and simultaneous reconstruction (with complications) for a tiny, Stage 0 left breast carcinoma in 2011 at age 69. I was given no choice but to remove the entire left breast. Since I had a history of benign cyst removals from both breasts, I opted -- after much teeth gnashing -- for removal of both. The biopsy doctor told me I would not need chemo or radiation, and I stuck with her words even when specialists tried to push them on me after the first major surgery. I'm a professional writer in the process of finishing a 2nd in a crime series novel with other projects done that need polishing before I try to find an agent for them. I already know that when my body has to heal from something, my mind is too tired and too drug-addled for writing. So unless they come up with something pretty quickly that doesn't screw up your system while you're killing cancer, my decision not to do treatments may already be made. I'm not a quitter. I'm drinking the teas and taking supplements and eating the right foods (which list is in flux, i.e. 1st it's eat raw veggies, then it's cook all your veggies). I'm a stubborn fighter on my own terms as long as that is possible. People like you are outstandingly brave. I'm so happy for you that your treatments have paid off.