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DiscussionLiving with Neuroendocrine NETS, any advice?
Neuroendocrine Tumors (NETs) | Last Active: Apr 11 12:20am | Replies (111)Comment receiving replies
Replies to "@tomrennie How big were your tumors? On liver? TYou"
My pancreas had an 8x6cm tumor. My liver also had innumerable lesions with the largest being 8x6cm. There were traces of the cancer throughout my body mostly in my bones. I started captem. It took a few cycles but everything started shrinking. After 13 cycles, my pancreas and liver were working again, so I was switched to a lower dose of maintenance capecitabine. After 1.5 years of just capecitabine, everything is still stable. Keep the faith. There is hope.