My carcinoid tumor is inoperable: What are the best ways to control?

it is located in the centrest hvering above and in between the intestines. Does the shot in the butt keep the tumor from growing.

Hello @panorman3,

You are asking good questions. Some members of this group have had a reduction in the sizes of tumors and some have not. If you would like more information, please read the posts in the following discussion group,
--First Lanreotide Injection
https://connect.mayoclinic.org/discussion/first-lanreotide-injection/?commentsorder=newest&pg=4
What does your doctor say about this type of treatment?

Centriest

I'm not familiar with the term, "centriest" @panorman3. Perhaps the term is "mesentery"? The mesentery is in the location you described earlier. If so, here is a discussion about NETs in the mesentery.
https://connect.mayoclinic.org/discussion/nets-mesentery-small-bowel-resection-lanreotide-octreotide-story/
I hope you will find some helpful information in the discussion.

I does sound like you have NETs of the mesentery which is the tissue around your intestines. I've got the same condition. Lanreotide is injected in the bottom and it is said to control Nets growth for many people. I've been getting those shots for about 2 years myself.

Thanks and GOD bless your condition
REV Paul Norman

Yes thanks mesentery

My carcinoid tumor is in the mesentery and cannot be operated on, i will know in the next few months how fast it is growing and what must i do, my doctor says prrt is overkill and i should take the shots.

Take the shots first. PRRT is in the options. Don’t go there first

@panorman3: I hope your Oncologist has some experience with Neuroendocrine Carcinoid Cancer due to NET tumors need expert treatment at the most efficient time in tumor progression. I urge you to research NET disease and learn all you can. Through your biopsy/diagnosis you learn your KI67 %, Tumor Grade and the Stage of your disease. Many of our tumors are slow growing and symptoms are manageable. Ask if your tumors are “Functioning” or not, are “Well-differentiated” or not and the results of your 24hr Urine test. Ask for a 2nd Opinion from a specialist in your NET cancer field, they are the best dr to advise your treatments and manage your health.
Most of us receive Lanreotide shots every 28 days at your local Oncologist to control symptoms and may reduce tumor growth.
I hope this helps you on this unplanned, unexpected change in your health. The more comfortable you are knowing the details of your tumors, really helps you converse with your drs to make best treatment decisions. This is a rare disease - not similar to the other types of cancer!