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Colleen Young, Connect Director avatar

Bladder Cancer Group: Introduce yourself and connect with others

Bladder Cancer | Last Active: Sep 16 11:03am | Replies (357)
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Profile picture for rickfromaz @rickfromaz

I have been battling with aggressive high grade Bladder Cancer since October of 2021. I have had a total of 12 surgeries to remove tumors, the latest of which was 2/24/25. The previous surgery was in September of 2024 to remove 4 tumors. I have undergone multiple treatments including a trial drug at Mayo. The staff, nurses and my Doctor, Mark Tyson, have been wonderful and helping me battle this cancer. After this last surgery, Dr. Tyson has recommended that I proceed with removing my bladder due to the high frequency of the tumors return and quantity and size. I'm scheduled to get a neobladder operation on 3/31/25. I would love any feedback from those who have undergone this procedure and your experience with this surgery and how life has been after.

Thanks Rick

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Replies to "I have been battling with aggressive high grade Bladder Cancer since October of 2021. I have..."
Sue, Volunteer Mentor | @sepdvm | Mar 6 9:08am

Hello @rickfromaz, My husband had that surgery at Mayo MN in December of 2022. He is glad that he did it, despite many complications and surgeries. He does need to self catheterize 4 times a day but can also urinate on his own some. Here is a link to details that I shared about his surgery and complications:
https://connect.mayoclinic.org/discussion/bladder-cancer-and-neobladder-surgery/
Others have had a smoother journey with this surgery, but we have decided that if there is the smallest chance of a problem, he will experience it. Should be playing the lottery......
He remains free of cancer as he just had CT urogram last week and he is down to just doing that yearly.

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