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Talk to me about your MAC journey please

MAC & Bronchiectasis | Last Active: Mar 7 3:34pm | Replies (12)

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@kimba78

Hi Pacathy,
I'm sorry you have MAC. I know the meds mess up your body to.
After 3xs a wk for three months on a very high does of antibiotics, Infusions. It was not fun at all, but I got through it, and I feel much better as well. Im on strong meds for MAC. I take 5 a day for the last 5 months. As soon as they do 3 sputum test to see where I am. If my 3 test comes back all 3 pass I start 12 to 15 more months on the meds.

Are you seeing a infectious diease doctor?
I don't know what state you are in but I am going to UW in Madison Wis. A specialist for MAC. He is Awsome. I would highly suggest you go to a infectious doctor. I've been through many doctors through the years. They tried to help me, but I have found other doctors just dont undersunderstand MAC.

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Replies to "Hi Pacathy, I'm sorry you have MAC. I know the meds mess up your body to...."

I don’t have MAC. As I said in post, my cultures were negative and I am currently doing well with the bronchiectasis and airway clearance.